3 ms·

To echo one of the earlier posts: I’m in group 1, but only just. I have spent multiple months of my adult life barely leaving the house, unemployed, curled up i

To echo one of the earlier posts: I’m in group 1, but only just. I have spent multiple months of my adult life barely leaving the house, unemployed, curled up in bed, in a seemingly endless cycle of anxiety and struggling to cope. I could literally feel my mind and body atrophying. Today I’m sort-of functional in that I show up to work every day, get most of my tasks done, and pay the bills. But I have very poor executive function and I’m really scared of dropping off the deep end again. Stories like yours scare me and inspire some disgust because I see the same tendency in myself and I don’t want to go there. I also know that practically speaking prolonged engagement/discussion with someone having such issues is unlikely to help. Nor is providing suggestions or blame. There’s not much anyone can do. The best I can offer is, if there was ever a period of your life where you were happier or more functional, can you see how to switch to that mode again? And if there’s one big thing blocking you (the fatigue, in your case), maybe there’s a one-time action you can perform, like going to a doctor, that could help. I’m not offering this advice to you specifically but just to anyone who might feel similarly stuck.

Llamamoe 5y ago
There were periods in my life when I coped better, but I have never been able to function in my life until I was lucky enough for a friend to just buy me a bilevel CPAP, at a point in life when I couldn't even go out and see a doctor anymore. Even now, I can barely work 1-3 hours a few days per week, and not starve myself while waiting for a consultation with an orthognatic surgeon. I am aware I could do better mentally, but at the end of the day, it's difficult to cope with being unable to achieve even simplest goals I set for myself, and the crippling loneliness of nobody believing that yeah, I'm really sick, really struggling, and really not managing very well. If your EF impairments are unremitting, it's likely that you have an underlying physiological condition. Can I ask you about the status of your sleep, digestion, and presence of any chronic health complaints, however trifle(like chronic cough, waking up grumpy, or mild indigestion)?

Llamamoe 5y ago

There were periods in my life when I coped better, but I have never been able to function in my life until I was lucky enough for a friend to just buy me a bilevel CPAP, at a point in life when I couldn't even go out and see a doctor anymore. Even now, I can barely work 1-3 hours a few days per week, and not starve myself while waiting for a consultation with an orthognatic surgeon. I am aware I could do better mentally, but at the end of the day, it's difficult to cope with being unable to achieve even simplest goals I set for myself, and the crippling loneliness of nobody believing that yeah, I'm really sick, really struggling, and really not managing very well. If your EF impairments are unremitting, it's likely that you have an underlying physiological condition. Can I ask you about the status of your sleep, digestion, and presence of any chronic health complaints, however trifle(like chronic cough, waking up grumpy, or mild indigestion)?