3 ms·
I'm 36 and have manifested Tourette's Syndrome since I was about six. My entire family has it and was part of a study at the University of Utah because of the u
by knicholes 5y ago
I'm 36 and have manifested Tourette's Syndrome since I was about six. My entire family has it and was part of a study at the University of Utah because of the unique circumstances of our family being particularly large and a particularly common manifestation of Tourette's throughout the family.
Anyway, I'm interested in the commentary in the link above that those with Tourette's are "free," particularly with their ability to say things that are inappropriate. I have pretty extreme facial tics (maybe one every few minutes) and head shaking coupled with verbal "oh shit!" that I've been able to kind of disguise as a cough.
I personally definitely say very shocking things very often. People say I'm, "abrasive" or "tactless" "with no filter."
I'm terrified to exist in this world of cancel culture, as I often find myself saying things that are very offensive in public. Fortunately I've been able to hold down a job at Adobe for nine years now without saying anything THAT "bad," but still I feel it's only a matter of time.
If I DO say something like the Anne Frank comment of that YouTuber, should I feel attacked if people don't let me say whatever it is my "disability" makes me say? Am I truly free to just say anything and just claim it was the Tourette's!? I don't think so. I think I'm still responsible for what I say, even if I don't mean to say it, because there's no way for someone to know if it's legitimate or not, and even if it was just Tourette's, I've just potentially injured people with my words.
This kind of makes me think about the plight of pedophiles. Is it their fault they're attracted to kids? No, but it is their fault if they act on it, because the kids can't (and definitely shouldn't) consent. If I "act" on my Tourette's, I feel like it's kind of still my fault. Though I recognize this is different because I don't really choose everything I say or do, but I can definitely hold it back and say nothing, though it's hard.
Also, if something is written, it's kind of hard to claim it was Tourette's because I could have gone back and edited it. Or maybe because of the lack of filter, it's not really my fault but my disability manifesting itself.
Even here on HN someone posted about an app they were creating for a very specific subset of people, and I mentioned that that reminded me of another thing that was made specifically for a subset of people, and I received a warning that if I kept up that kind of behavior, I would be banned from participating in future HN discussions.
Was that discrimination? Or was that me just overstepping societal norms that I could have definitely not posted, as it was in written form?
- DoreenMichele 5y agoTrying to navigate the world with a disability is an often frustrating and frightening experience. Social norms are also often frightening and frustrating and inconsistently enforced. As the world population has grown and the internet has facilitated more ability to interact with diverse populations, the opportunity for such friction has grown as well. I appreciated reading your introspective comment where you shared that you have more questions than answers.