4 ms·
Let me rephrase that. I wonder if some of the people who are labeled under Morgellon's disease have had an actual encounter with such a bacteria. You have writ
by Karawebnetwork 5y ago
Let me rephrase that. I wonder if some of the people who are labeled under Morgellon's disease have had an actual encounter with such a bacteria.
You have written elsewhere that "Morgellons is something that people only ever "have" if they go looking for it."
My experience with the concept is similar to that, but different. I first heard about it in the context of a building that had what is now called "sick building syndrome." In short, a combination of poor air circulation, bathrooms that weren't properly ventilated on the outside, and an HVAC system that hadn't been cleaned in over a decade.
People were unknowingly sick, but had nothing to show for it except the odd particle found on their skin. So the logical people did what logical people do and looked for an answer. Some went to dermatologists who only gave the answer "there are signs of an unknown infection" and provided creams. For some, this is enough to move on. While others need the exact answer to find peace. So there you have it, a bunch of educated people on search engines writing "redness on the skin with dust particles", "infection only in one room", "small itchy filaments on the skin", etc. Soon enough, "Morgellons" appeared in the results and was the topic of conversation.
Now obliviously it wasn't "Morgellons". Air quality tests were performed and revealed the presence of spores, which led to the discovery that the bathroom vent was not properly installed and that the HVAC system was long overdue for cleaning.
However, if these tests had not been performed and the building owner had not been cooperative, you would have a large group of engineers believing in Morgellons, as that was the only "logical" explanation at the time.
This brings us back to my question, "I wonder if this might have something to do with what people call Morgellon's disease." Not necessarily as an explanation of Morgellons but as an explanation of some of the reported symptoms. If I had on my body the exact same bacteria as the one in the short video of the article and went to a search engine to find the answer, I would very likely fall on Morgellon's disease.
It's entirely possible that 100% of the people who claim to have seen filaments moving on their skin were imagining things, that they all have a mental health issue.
But coming from a fibromyalgia household where the women in my family were led to believe their illness was imaginary ("female hysteria") for decades, some of them wasting years on powerful antipsychotic and antidepressant medications, I am very wary of dismissing self-reported symptoms as psychosomatic.
- unfocussed_mike 5y ago> But coming from a fibromyalgia household where the women in my family were led to believe their illness was imaginary ("female hysteria") for decades, some of them wasting years on powerful antipsychotic and antidepressant medications, I am very wary of dismissing self-reported symptoms as psychosomatic. I'm glad they are getting help. (Also good job with the HVAC and the building; an unprovably unpleasant environment can mess with people's lives) But it's worth noting as others have that Morgellons is based on a specific claim (strange microscopic growths out of the skin) that is testable. The things that sufferers/believers think are their disease turn out to be cellulose in nature. In other words, cotton microfibres.