3 ms·

I just saw this very short (1 minute and 50 seconds) video yesterday of a woman with a more severe form of a disease that I have called Mast Cell Activation Syn

I just saw this very short (1 minute and 50 seconds) video yesterday of a woman with a more severe form of a disease that I have called Mast Cell Activation Syndrome (MCAS). Video: https://www.youtube.com/watch?v=JzsmGUTE3TE https://www.youtube.com/watch?v=JzsmGUTE3TE In the video, she's showing off hundreds of bottles of medications she's gone through, most of them not covered by insurance because they are available over-the-counter. Even the prescription-only drugs were not covered by Medicare (!). It doesn't make any sense. Insurance is useless if they will not pay for the only medications that will treat your disease. It struck me that she would have a far better quality of life and cheaper healthcare if she just moved to another country, because the US healthcare system is an atrocious disaster.

cjbgkagh 5y ago
Knowing the US healthcare system at least half of those drugs are not only insanely expensive but counter productive. The system rewards waste. I have a related condition and get my meds from the gray and black markets (thanks China and India)
- tediousdemise 5y ago
  If you are comfortable, would you mind sharing any reputable sites where this is possible?
  - cjbgkagh 5y ago
    peptidesciences is gray market, and certain overseas online pharmacies you can legally order 3 months supply with a prescription. Some of these suppliers don’t check for the prescription. These seem to cater to the Trans community so a list of reliable suppliers can be found in Trans reddit groups. China and India are the original sources of the meds not the retailers, I prefer Indian where possible. Low Dose Naltrexone is highly effective for MCAS but it’s generic and cheap so there is absolutely no money in it. It’s easy enough to get a normal legal prescription for this from AgelessRx. I prefer to manage the dose myself with titrated 50mg pills which also happens to be cheaper, but unfortunately black market.
    - collegeburner 5y ago
      Interesting, what do you get from peptidesciences? I know about it used mostly for some bodybuilding PEDs along with some stuff in the longevity/biohacking community.
      - cjbgkagh 5y ago
        Ipamorelin/ModGRF, NAD+, GHK-cu, and occasionally Semax, Selank, and Thymosin Alpha 1. The GHRPs is probably the most beneficial for me, followed by NAD+. After many decades of medical gaslighting I now act as my own doctor/medical researcher and so far I’m doing a much better job at it.

cjbgkagh 5y ago

Knowing the US healthcare system at least half of those drugs are not only insanely expensive but counter productive. The system rewards waste. I have a related condition and get my meds from the gray and black markets (thanks China and India)

tediousdemise 5y ago
If you are comfortable, would you mind sharing any reputable sites where this is possible?
- cjbgkagh 5y ago
  peptidesciences is gray market, and certain overseas online pharmacies you can legally order 3 months supply with a prescription. Some of these suppliers don’t check for the prescription. These seem to cater to the Trans community so a list of reliable suppliers can be found in Trans reddit groups. China and India are the original sources of the meds not the retailers, I prefer Indian where possible. Low Dose Naltrexone is highly effective for MCAS but it’s generic and cheap so there is absolutely no money in it. It’s easy enough to get a normal legal prescription for this from AgelessRx. I prefer to manage the dose myself with titrated 50mg pills which also happens to be cheaper, but unfortunately black market.
  - collegeburner 5y ago
    Interesting, what do you get from peptidesciences? I know about it used mostly for some bodybuilding PEDs along with some stuff in the longevity/biohacking community.
    - cjbgkagh 5y ago
      Ipamorelin/ModGRF, NAD+, GHK-cu, and occasionally Semax, Selank, and Thymosin Alpha 1. The GHRPs is probably the most beneficial for me, followed by NAD+. After many decades of medical gaslighting I now act as my own doctor/medical researcher and so far I’m doing a much better job at it.