Very sorry to hear about your daughter but there has never been a better time in the history of medicine to be working on biotech solution to rare diseases. You

Very sorry to hear about your daughter but there has never been a better time in the history of medicine to be working on biotech solution to rare diseases. You will have to become an expert yourself in some of the pathways and therapeutic avenues that may help. But you can now fund academic research by directly sponsoring research at an academic or clinical lab, including doing so through Molecule.to (not involved w the company but a fan) that enables research funding from passionate communities. Just keep going one step at a time. Zen