Hey klankbrouwerij.. Just chiming in as my son too has an 18q deletion, albeit further towards the distal arm. Just to bring to your attention, if you were not

Hey klankbrouwerij.. Just chiming in as my son too has an 18q deletion, albeit further towards the distal arm. Just to bring to your attention, if you were not already aware, of https://www.chromosome18eur.org https://www.chromosome18eur.org and its parent organisation https://www.chromosome18.org https://www.chromosome18.org. Some great resources and there'll be folks who have experienced similar issues to you and yours.