3 ms·
Australia has "Rare Voices Australia" which is for rare genetic diseases that face this same issue. I have met the co-founder who is an impressive and emphatic
by ImaCake 5y ago
Australia has "Rare Voices Australia" which is for rare genetic diseases that face this same issue. I have met the co-founder who is an impressive and emphatic person. Similar probably exists where you are.
https://rarevoices.org.au/ https://rarevoices.org.au/
- halukakin 5y agoThank you for sharing this. I think we should add such organizations' links to idefine website. In this case, I'm guessing not all Australian parents would know about this org.