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Hello! > How to raise funds for rare disease research? I'm not a marketing expert (though I do work with rare diseases). But a good starting point might be t
by piqufoh 5y ago
Hello!
> How to raise funds for rare disease research?
I'm not a marketing expert (though I do work with rare diseases).
But a good starting point might be to checkout https://www.rarebeacon.org/ https://www.rarebeacon.org/
There certainly is help and there are options, but as you understand finding and accessing them isn't always easy. Good luck on your journey
- halukakin 5y agoThis looks very helpful. First time I heard about this organization. Apparently, they train patient groups like us. They even host their own drug repurposing conference. I'll signup on the email list and study their site. Thank you.