3 ms·
Thank you! Matt is a huge inspiration to all rare disease parents. I will read the NIH SBIR grant.
by halukakin 5y ago
Thank you! Matt is a huge inspiration to all rare disease parents. I will read the NIH SBIR grant.
- gardenfelder 5y agoIn relation to that story is this https://www.science.org/content/article/researchers-turn-volunteer-readers-speed-research-rare-genetic-disorder https://www.science.org/content/article/researchers-turn-vol... where the Su Lab enlisted crowd sourcing in an open source online platform to assist in reading large amounts of literature on NGLY1. Something similar might be possible here. At the same time, there are emerging platforms in the social network space which focus on structured conversations, Quests; in that case game mechanics and the social dynamics of guilds in MMOs come into play; I cannot say whether that would necessarily be of immediate value, but there are arguments for exploring that space as well.
- mattmight 5y agoFeel free to reach out. Happy to help. Also, I've put much of what I've learned online: https://bertrand.might.net/articles/algorithm-for-precision-medicine/ https://bertrand.might.net/articles/algorithm-for-precision-...
- halukakin 5y agoThank you Matt! Just so you know, "quickstart molecular biology" is my daily reading thanks to you.