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re: Keto for seizures: They dont actually know why it works. But on keto your cells are working on a completely different energy source so there's whole metabol
by throwawayanon47 5y ago
re: Keto for seizures: They dont actually know why it works. But on keto your cells are working on a completely different energy source so there's whole metabolic chains that are completely different. I think the leading theory is its one of the by-products of those metabolic chains, rather than the ketones themselves. Some say gut bacteria have a role in it too.
re: CBD: Interestingly, Dravet Syndrome is also shown to react fairly well to CBD. If you've heard of the 'Charlottes web' strain of cannabis and all that stuff, that was named after Charlotte Figi who had Dravet Syndrome.
CBD is used quite widely to treat Dravet - there's been a lot of research and there's now an 'official' pharmaceutical CBD called Epidolex https://www.webmd.com/drugs/2/drug-176175/epidiolex-oral/details https://www.webmd.com/drugs/2/drug-176175/epidiolex-oral/det... - approved by the FDA, NHS etc. You can get it on prescription over here.
Theres a certain 'pot cures everything' lobby that have overblown it a bit. It does seem to work but there are side effects and there are other drugs that work just as well or better (with the caveat that with epilepsy, not every patient responds the same to every drug). e.g. Fenfleuramine is another new (or technically, repurposed) drug for Dravet that seems to work better than CBD for most people. Although I have met some Dravet parents who swear by CBD and say they've done great with it. Others say that CBD on its own isn't enough, you need proper cannabis.