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Presumable FDAs analysis assumed current staffing levels. Going to go out on a limb and assume they’ve got a LOT more people involved in creating docs than in d
by throwawaygh 5y ago
Presumable FDAs analysis assumed current staffing levels. Going to go out on a limb and assume they’ve got a LOT more people involved in creating docs than in deidentifying docs.
And, yes, I think public data on this sort of stuff is important and should be properly resourced.
I think:
Step 1. ASK PERMISSION before changing the way data is handled.
Step 2. Share full datasets more generously, but still gated by use and handling agreements. This probably means a private citizens without ethics research training and a supporting it dept can’t get a copy and peruse it on their personal laptop, but also that a truly enormous number of researchers would be able to access the data.
The gold standard of a CSV in a public s3 bucket shouldn’t be the enemy of good enough.