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>... my name with my medical history... >My family... >... I'm far more worried about that advertising profile than I am about the "what if's" of my medical d
by jjulius 5y ago
>... my name with my medical history...
>My family...
>... I'm far more worried about that advertising profile than I am about the "what if's" of my medical data...
Again - yours. It's great that you're fine with your data being public, but as is evidenced by the way certain posts in this comment chain are being down/upvoted, clearly many other people share the opposite view and would prefer their data remain private.
- cogman10 5y agoOther nations have more open laws about sharing medical data than the US. (I believe Iceland? Greenland? One of those island nations has genetic ancestry data for all citizens). AFAIK, the world hasn't ended and they aren't living in a dystopia because their medical information is so well documented. On the contrary it has served to stop the spread of genetic disorders and aid in medical research. Certainly I personally don't have these hangups about privacy. I think it's weird that society has created them. Pre-HIPAA that wasn't the case and it wasn't exactly seen as major breaches of privacy for doctors/nurses to talk relatively openly about diseases their patients had. The sanctimony of medical data is a recent development practically unique to the US. I'm not advocating that we broadcast to everyone details of every medical checkup. I am, however, saying that we shouldn't have nearly the level of restrictions we have around sharing medical information, particularly between medical institutions doing research.