2 ms·
Fair enough, what do you propose to give access to people who want to help ?
by rvnx 5y ago
Fair enough, what do you propose to give access to people who want to help ?
- throwawaygh 5y agoA strict data use agreement signed by a real person with tangible assets and reputation at stake, outlining the acceptable and unacceptable uses of the data and well as appropriate data handling rules. Until/unless patients agree otherwise. I.e., the status quo.
- jacquesm 5y agoGo to work in the field.
- bshipp 5y agoAnonymizing datasets is time consuming and would take resources away from the FDA to implement, instead of doing it themselves. I have no doubt people want to help but the only way they really could would be to sign a contract with someone who is allowed to share that data internally, and operate in a embargoed situation (such as on-premise) under an NDA. Otherwise it's sort of like my 10-year-old wanting to help me replace an engine in a car. It's important to let him do it so he can learn but it's likely going to take me much longer to on-board him and get him up to speed than if I did it myself.
- rvnx 5y agoI think Pfizer got 50B+ USD in revenue in 2021, maybe they can find a little bit of change somewhere to hire specialists to prepare the data cleanly and release it ?
- deleted 5y ago[deleted]
- snowwrestler 5y agoA dataset that Pfizer spends a ton of money redacting before releasing might not address concerns that Pfizer could be hiding something.