3 ms·
I'm not so sure that you should be so sure that there are no databases that such data can be referenced against. Regarding stripping out major identifiers, plea
by jjulius 5y ago
I'm not so sure that you should be so sure that there are no databases that such data can be referenced against. Regarding stripping out major identifiers, please note that OP commented that "it's not as simple as just removing the sensitive medical data because the primary or secondary analyses may be dependent on them".
And of course raw data like this could benefit patients, but keeping access to raw data limited also benefits patients. Sure, the data is readily available under a loose NDA, but it's available to people who have explicit knowledge of the requirements around handling sensitive, identifiable data. Average Joe's and Jane's do not have this knowledge, and bad actors just plain don't give a shit.