My kid has an autoimmune (not genetic) version of this. It almost killed him. He is 5’ 10” and got down to 105 lbs, was severely malnourished and dehydrated. Co

My kid has an autoimmune (not genetic) version of this. It almost killed him. He is 5’ 10” and got down to 105 lbs, was severely malnourished and dehydrated. Couldn’t keep food down without significant medical intervention. He spent a month in the hospital and another month in an inpatient clinic to start to address the resultant eating disorder. Also, without insurance, the drug to treat it (sucrase) is $4000/month and is available only in a liquid form that has to be refrigerated… and you have to take it with meals. Which means you have to carry a small cryo bottle with you wherever you go. Don’t wish for this to happen to you.