Today I saw an article about Roma, claiming genetic data from some of them was collected against their consent (years ago when asking for consent was not formal

Today I saw an article about Roma, claiming genetic data from some of them was collected against their consent (years ago when asking for consent was not formalized like today), and should be deleted. It is used for scientific studies. I think that is madness - if the privacy craze starts to harm science, it should be reconsidered.