3 ms·
Ankylosing Spondylitis sufferer here. I wish you the best of health and may HLA-B27 eff right off (assuming you are HLA-B27 positive). I empathize with another
by wpasc 5y ago
Ankylosing Spondylitis sufferer here. I wish you the best of health and may HLA-B27 eff right off (assuming you are HLA-B27 positive). I empathize with another comment you made about "Have you tried...?"
Yes. We have. (Advil, Indocin, Sulfasalazine, Meloxicam, Diclofenac Sodium, Remicade, Humira, Enbrel, Curcumin, Vitamin D and also A-Z, Gluten Free, Vegan, Paleo, Whole30, Mediterranean, Yoga, Pilates, Acupuncture, Stem cell injections, Steroid injections, Physical Therapy, Glucosamine, Glutamine, BCAA's, Probiotics, Probiotic foods, electro stim therapy, heat, cold, stretching, Meditation, CBD, CBT, starch free, and probably other stuff I'm forgetting)
- wpasc 5y agoNot meant to be a negative comment, a lot of stuff helps to some degree. No cures though. to anyone wondering what worked and didnt, just work with your doctor and experiment with your doctor's permission, and be skeptical but hopeful.
- enimodas 5y agoDid you see that guy on, i think on the AS reddit, who did extreme saunaing? You seem to be willing to try things, maybe it's something for you ;)
- wpasc 5y agohah I have not but I'd like to have a sauna in my future home regardless. Currently I'm in an apt and going to a sauna in nyc is not super appealing to me (cost, friction in working it into my day with having to go somewhere, etc), but when I move to the suburbs I definitely want to get one.
- enimodas 5y agoHe's not using a normal sauna, but something with heaters/lamps. I'm not dedicated enough to try it myself: https://www.reddit.com/r/PsoriaticArthritis/comments/es5w6f/thermal_saunas/ff8c7xn/ https://www.reddit.com/r/PsoriaticArthritis/comments/es5w6f/...
- detaro 5y agoThere also are commercial "apartment saunas", which are basically a tent with some heaters ready-made. Not sure if they fit the specific requirements here, but less improvisation.