3 ms·

Have you tried giving things time off to heal with an elemental diet? It wasn't pleasant, but I survived off powdered amino acids, oil capsules, honey and cocoa

Have you tried giving things time off to heal with an elemental diet? It wasn't pleasant, but I survived off powdered amino acids, oil capsules, honey and cocoa for a couple months. The commerical/hospital preparations are for tube feeding patients and outrageously expensive. Look into nicotinic acid, a form of niacin. The "flushing" one. If you supplement with it start slow, get used to the burning sensation. It goes away after a few times. Avoid biologics unless you absolutely have to

xtracto 5y ago
I'll tell you something as someone who doesnt have crohn's but has suffered with IBS and undiagnosed permanent abdominal pain for 25 years: Yes... we've tried everything, including stupid diets and even FMT. If you've read it on the internets we have likely also . We are mostly aware and thinking 24/7 about our disease. So yeah, whenever someone randomly tells us to try X or Y random thing, most likely we've already tried it, or have pondered it and decided not to. So most similar comments are usually annoying.
- tornato7 5y ago
  I have/had severe Crohn's which I have successfully managed to remission through basically diet and only diet (I had allergic reactions to the common drugs). 90% of people who tell me they've 'tried' dieting haven't really. Have you actually strictly followed an elimination diet for at least a year? Most people say something like they stopped eating bread for three weeks and it didn't help. But that's not good data. One must eliminate every single source of gluten and dairy (or do something like SCD diet) by studying the ingredient labels on everything they consume, and do this for 1-2 years, with zero cheat days. Most people can't do this.
  - tylorr 5y ago
    > Most people can't do this. Which is why > have pondered it and decided not to
    - tornato7 5y ago
      Yes, if biologics work for you with minimal side effects, great. Unfortunately if I get another infusion I will die, so I had to go down another route.
tylorr 5y ago
I have Ulcerative Colitis and biologics are working great for me, I take Simponi.
- helloworld11 5y ago
  For how long has it worked so far? I ask because I've known several people who have had certain drugs for UC work for a while, quite well even, and then just randomly stop working, prompting them to seek yet another treatment or blend of treatments. Do you also use any other medication for it?

xtracto 5y ago

I'll tell you something as someone who doesnt have crohn's but has suffered with IBS and undiagnosed permanent abdominal pain for 25 years: Yes... we've tried everything, including stupid diets and even FMT. If you've read it on the internets we have likely also . We are mostly aware and thinking 24/7 about our disease. So yeah, whenever someone randomly tells us to try X or Y random thing, most likely we've already tried it, or have pondered it and decided not to. So most similar comments are usually annoying.

tornato7 5y ago
I have/had severe Crohn's which I have successfully managed to remission through basically diet and only diet (I had allergic reactions to the common drugs). 90% of people who tell me they've 'tried' dieting haven't really. Have you actually strictly followed an elimination diet for at least a year? Most people say something like they stopped eating bread for three weeks and it didn't help. But that's not good data. One must eliminate every single source of gluten and dairy (or do something like SCD diet) by studying the ingredient labels on everything they consume, and do this for 1-2 years, with zero cheat days. Most people can't do this.
- tylorr 5y ago
  > Most people can't do this. Which is why > have pondered it and decided not to
  - tornato7 5y ago
    Yes, if biologics work for you with minimal side effects, great. Unfortunately if I get another infusion I will die, so I had to go down another route.

tylorr 5y ago

I have Ulcerative Colitis and biologics are working great for me, I take Simponi.

helloworld11 5y ago
For how long has it worked so far? I ask because I've known several people who have had certain drugs for UC work for a while, quite well even, and then just randomly stop working, prompting them to seek yet another treatment or blend of treatments. Do you also use any other medication for it?