3 ms·

just curious what your triggers are... for me, it is grapes (but not things like blueberries), caffeine and cashews I suspect w/ the grapes, there's maybe som

just curious what your triggers are... for me, it is grapes (but not things like blueberries), caffeine and cashews I suspect w/ the grapes, there's maybe some microbes or fungi on the skins

laurent92 5y ago
Caffeine? How did you isolate this cause? Do you think Nespresso’s alu capsules are involved? Since I drink Nespresso I have strange bowel movements, extreme tiredness and getting fat.
- fnord77 5y ago
  coffee, tea, coke, diet coke, energy drinks all set me off. decaf coffee and tea do not. So I am assuming caffeine is the problem. Caffeine does increase intestinal motility. Of course it could be something in those drinks, but I'm fairly certain it is the caffeine.
  - hollerith 5y ago
    Most (all?) so-called "decaffinated" coffee has a decent amount of caffeine.
    - fnord77 5y ago
      maybe like 1/10th or less. not enough to trigger me
bladegash 5y ago
Grains are a big one for me. Red/fatty meat also seems to be one as well. I will say it’s been difficult to pinpoint exact triggers and far easier to pinpoint things that don’t trigger me though. I know rice/chicken are two things that I tolerate well. Dairy seems to be fairly well tolerated too. Bland crackers like saltines and even Nilla wafers are usually fine as well. Oddly, one thing that really triggers me is things that are fruit snacks/similar items. Not sure if it is gelatin or what, but something in them sets me off.
- m0lecules 5y ago
  Could be pectin. or salicylates. or lots of things. How do you do with aspirin? Can you eat jam?
  - bladegash 5y ago
    I think jams are fine, but can’t recall having tried them since being diagnosed. Diet has been fairly limited and am pretty hesitant to try new things. Might be worth trying them out to see how it’s tolerated though!
empressplay 5y ago
For me things that are MCAS triggers tend to be problematic. Also grains, animal fats, old cheese and egg whites
- buildsjets 5y ago
  High angle of attack at low airspeed while pulling G does tend to be problematic.
pvaldes 5y ago
Grapes are treated with copper
bimboler38 5y ago
The worst "attack" I've ever had was with spaghetti squash. I got the usual: bloating and diarrhea but on a scale I had never experienced before. I felt extremely tired void of any appetite for a couple days after. Really wonder what in it did it for me. Maybe it was a coincidence, or an allergy. Haven't figured it out to this day. Other than that, any enriched flour pretty consistently gives me light bloating.

just curious what your triggers are... for me, it is grapes (but not things like blueberries), caffeine and cashews I suspect w/ the grapes, there's maybe some microbes or fungi on the skins

laurent92 5y ago

Caffeine? How did you isolate this cause? Do you think Nespresso’s alu capsules are involved? Since I drink Nespresso I have strange bowel movements, extreme tiredness and getting fat.

fnord77 5y ago
coffee, tea, coke, diet coke, energy drinks all set me off. decaf coffee and tea do not. So I am assuming caffeine is the problem. Caffeine does increase intestinal motility. Of course it could be something in those drinks, but I'm fairly certain it is the caffeine.
- hollerith 5y ago
  Most (all?) so-called "decaffinated" coffee has a decent amount of caffeine.
  - fnord77 5y ago
    maybe like 1/10th or less. not enough to trigger me

bladegash 5y ago

Grains are a big one for me. Red/fatty meat also seems to be one as well. I will say it’s been difficult to pinpoint exact triggers and far easier to pinpoint things that don’t trigger me though. I know rice/chicken are two things that I tolerate well. Dairy seems to be fairly well tolerated too. Bland crackers like saltines and even Nilla wafers are usually fine as well. Oddly, one thing that really triggers me is things that are fruit snacks/similar items. Not sure if it is gelatin or what, but something in them sets me off.

m0lecules 5y ago
Could be pectin. or salicylates. or lots of things. How do you do with aspirin? Can you eat jam?
- bladegash 5y ago
  I think jams are fine, but can’t recall having tried them since being diagnosed. Diet has been fairly limited and am pretty hesitant to try new things. Might be worth trying them out to see how it’s tolerated though!

empressplay 5y ago

For me things that are MCAS triggers tend to be problematic. Also grains, animal fats, old cheese and egg whites

buildsjets 5y ago
High angle of attack at low airspeed while pulling G does tend to be problematic.

pvaldes 5y ago

Grapes are treated with copper

bimboler38 5y ago

The worst "attack" I've ever had was with spaghetti squash. I got the usual: bloating and diarrhea but on a scale I had never experienced before. I felt extremely tired void of any appetite for a couple days after. Really wonder what in it did it for me. Maybe it was a coincidence, or an allergy. Haven't figured it out to this day. Other than that, any enriched flour pretty consistently gives me light bloating.