4 ms·
Anecdotally this rings very true. Actually I'd be even more cynical than it. I know two people that were facing serious chronic health issues that were not read
by jasonwatkinspdx 5y ago
Anecdotally this rings very true. Actually I'd be even more cynical than it. I know two people that were facing serious chronic health issues that were not readily diagnosed. They were treated like a hot potato between specialists.
In one case it took nearly 2 year to arrive at a correct diagnosis and corrective action, which involved both medication and surgery.
In the other case the person was moving into liver failure, and placed on the transplant list. Luckily a family friend worked for the same healthcare organization as an IT professional, and knew exactly what to do. She marched the patient into the ER, had her sit down in a wheel chair, and made it crystal clear that she was going to be a gigantic PITA until they found out what was killing the patient. Within the day they had a plausible answer, and confirmed it with lab results within the week as I recall.
It shouldn't be this way, but unfortunately in US healthcare it is. Having an uncommon illness is an absolute nightmare, one that destroys entire families finances if not outright killing people.
- darkerside 5y agoTerrifying that the liver transplant feels like a "let's try clearing your cache and cookies".