3 ms·
> This is one of those cases where the thinking is quite different between the US and Europe. In Europe, you need to get the permission of everyone involved in
by hervature 5y ago
> This is one of those cases where the thinking is quite different between the US and Europe. In Europe, you need to get the permission of everyone involved in the study before you can publish your data about them, if there is any chance that they can be identified from that data.
In the US there are all sorts of protections for research subjects both in terms of potential harm and privacy. In fact, there are mechanisms to be exempt on keeping consent documentation if that is the primary mechanism in which the subject could be harmed (for instance, in a data leak). His thinking is contentious at best and would generally be regarded as unethical. People seeking medical treatment should not have to agree to have their raw data disclosed and this falls under the undue influence principle of ethical research.