3 ms·

I've lost count of the number of doctors that told my late wife the headaches were all in her head (Mentally to be clear here). When she laid down, she had no

I've lost count of the number of doctors that told my late wife the headaches were all in her head (Mentally to be clear here). When she laid down, she had no headache. When she would be upright the headache would return. This is frequently, and incorrectly, called "An Afternoon Migraine". After nearly two decades, because the Medical Establishment had written her off as a mental case, she figured out what she had herself, which was Intracranial Hypotension due to Cerebrospinal Fluid (CSF) Leaks. CSF Leak detection is still a developing area of medical research. We desperately need better imaging technology than we have today. CSF Leak detection is still in the "Stone knives and Bearskins" category. Hopefully the brilliant people that hang out here can help with that... Karen eventually killed herself because of what had become constant pain from the CSF Leak and poisoning by the Fluoroquinolone antibiotic Levaquin (Cipro is in the same drug class; the FDA itself says to only use this class of Meds as the last resort yet the doctors give it out like candy). Karen's Journal was part of a FDA hearing in 2015 about the damage these antibiotic cause. Her whole messy saga became one of the featured stories in the documentary Pain Warriors which is free to watch on Amazon Prime and TubiTV. It can be found other places as well. It is NOT a warm and fuzzy thing to watch. The bottom line is be responsible for your own health and NEVER blindly trust what anyone in the Medical Establishment tells you. Do your own research on your condition etc...

sterlind 5y ago
I'm sorry for your loss. Fluoroquinolones are indeed scary. I was saved from them in college by my hypochondria, when I developed a UTI and my doctor prescribed one to me. I googled, found tendon damage issue and asked for a different Rx. Years later, I was diagnosed with Ehlers-Danlos syndrome and told never to take this class of antibiotics, since our faulty collagen triggers this side effect and can cause arteries to rupture.
- rpaddock 5y ago
  I'm up to 47 people that have told me that their own CSF Leak started after taking a FQ based antibiotic. I spoke about this subject at the first ever Spinal CSF Leak conference to the worlds leading doctors for the condition. They are well aware of the issues. The EDS docs are also well aware of the dangers posed by these drugs. Sadly few others are. Dr Schievink, at the top of the CSF Leak food chain (After him there is no places else to go) has stated "that just slightly less than 100% of the people with CSF Leaks, have some type of connective tissue disorder".
- rpaddock 5y ago
  This obscure FDA document prepared by the FDA itself for the 2015 hearing says that for UITs, Sinusitis and Bronchitis, the three most common things docs give FQs for, work no better than placebos. This document also gives the damage caused by FQs the name Fluoroquinolone-Associated Disability or FQAD. The EU equivalent of the FDA says FQs should be removed from the market due to their devastating side effects. "FDA Briefing Document Joint Meeting of the Antimicrobial Drugs Advisory Committee and the Drug Safety and Risk Management Advisory Committee November 5, 2015 The Benefits and Risks of Systemic Fluoroquinolone Antibacterial Drugs for the Treatment of Acute Bacterial Sinusitis (ABS), Acute Bacterial Exacerbation of Chronic Bronchitis in Patients Who Have Chronic Obstructive Pulmonary Disease (ABECB-COPD), and Uncomplicated Urinary Tract Infections (uUTI)." https://web.archive.org/web/20170113234645/http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/Anti-InfectiveDrugsAdvisoryCommittee/UCM467383.pdf https://web.archive.org/web/20170113234645/http://www.fda.go...

sterlind 5y ago

I'm sorry for your loss. Fluoroquinolones are indeed scary. I was saved from them in college by my hypochondria, when I developed a UTI and my doctor prescribed one to me. I googled, found tendon damage issue and asked for a different Rx. Years later, I was diagnosed with Ehlers-Danlos syndrome and told never to take this class of antibiotics, since our faulty collagen triggers this side effect and can cause arteries to rupture.

rpaddock 5y ago
I'm up to 47 people that have told me that their own CSF Leak started after taking a FQ based antibiotic. I spoke about this subject at the first ever Spinal CSF Leak conference to the worlds leading doctors for the condition. They are well aware of the issues. The EDS docs are also well aware of the dangers posed by these drugs. Sadly few others are. Dr Schievink, at the top of the CSF Leak food chain (After him there is no places else to go) has stated "that just slightly less than 100% of the people with CSF Leaks, have some type of connective tissue disorder".
rpaddock 5y ago
This obscure FDA document prepared by the FDA itself for the 2015 hearing says that for UITs, Sinusitis and Bronchitis, the three most common things docs give FQs for, work no better than placebos. This document also gives the damage caused by FQs the name Fluoroquinolone-Associated Disability or FQAD. The EU equivalent of the FDA says FQs should be removed from the market due to their devastating side effects. "FDA Briefing Document Joint Meeting of the Antimicrobial Drugs Advisory Committee and the Drug Safety and Risk Management Advisory Committee November 5, 2015 The Benefits and Risks of Systemic Fluoroquinolone Antibacterial Drugs for the Treatment of Acute Bacterial Sinusitis (ABS), Acute Bacterial Exacerbation of Chronic Bronchitis in Patients Who Have Chronic Obstructive Pulmonary Disease (ABECB-COPD), and Uncomplicated Urinary Tract Infections (uUTI)." https://web.archive.org/web/20170113234645/http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/Anti-InfectiveDrugsAdvisoryCommittee/UCM467383.pdf https://web.archive.org/web/20170113234645/http://www.fda.go...