4 ms·

ME/CFS https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome In a way, I'm glad that Corona lifted the

by WA 5y ago

ME/CFS https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome In a way, I'm glad that Corona lifted the awareness about post-infection issues. The common knowledge usually was "you're sick for a week and then you're fine". I don't have ME/CFS, but my body started to react weird to some harmless common cold infections. My blood pressure drops and remains low, sometimes for weeks. Makes me feel dizzy, makes working out almost impossible. Also, I had some stomach bug several years ago with some side effects lasting for 2 months. Most people don't believe that a "harmless" infection can cause side effects for weeks (and neither did I), but it's a thing.

bengale 5y ago
I had a virus a few years back that put me on my arse for about 4 weeks. Docs only said that might blood showed I was fighting a virus and it would pass. But for about 3 years afterwards I remained feeling tired, I used to have heart palpitations multiple times a week, I'd get symptoms like I was ill every 3 or 4 weeks. Was bloody awful tbh. Weirdly the first AZ vaccination stopped it, it put me in bed for a day or two and then when I got up I started noticing I was feeling better than normal, but didn't really believe it was gone away. But it's now been months since the jab and I haven't had a single episode with my heart and my energy is way up. The definitely need to do a little more research into this because my doctors were basically telling me it was just how I was going to be, and it does seem like, however accidentally, there was a solution to be had.
- andrekandre 5y ago
  exactly the same here! i thought i was gonna just croak at some point, with doctors just saying "i need to de-stress" or "eat better" do you know what virus you had originally that did that to you?
  - bengale 5y ago
    Yeah I was convinced I was dying, I went to the hospital at first because I thought I was having a heart attack. All they said to me from the blood test was that it showed I was fighting a virus, but I don't know how they would have gone about working out which one, they just told me to get some rest. I basically slept for the 4 weeks, lost a load of weight because I had zero appetite, was a crazy time. Afterwards I kept going back about the heart palpitations and they did all sorts of tests and scans but kept basically telling me the same, destress, eat better, get more sleep, etc. When I told them I was tired all the time they told me everyone feels like that. But now it's cleared I can tell there was definitely something abnormal going on.
    - andrekandre 5y ago
      thanks for the reply, its appreciated > All they said to me from the blood test was that it showed I was fighting a virus, but I don't know how they would have gone about working out which one, they just told me to get some rest. for myself, i went and got checked for natural antibodies for covid, thinking it was caused by asymptomatic (or long) covid or something... but the result was negative... maybe ill check for some others (west nile etc) if i had time. > But now it's cleared I can tell there was definitely something abnormal going on. one clue for me that also supports some kind of virus/infection caused autoimmune issue, was that i had a slightly higher temperature for several months and an elevated RF level (indicates overall inflammation) when doing my health checkups... that is, until getting the vaccine: full-stop no joke those issues all disappeared. i know it sounds crazy to some people, but thats my experience... and thanks for sharing yours, its great to be able to exchange notes with someone who may have had the same issue

by WA 5y ago

bengale 5y ago

I had a virus a few years back that put me on my arse for about 4 weeks. Docs only said that might blood showed I was fighting a virus and it would pass. But for about 3 years afterwards I remained feeling tired, I used to have heart palpitations multiple times a week, I'd get symptoms like I was ill every 3 or 4 weeks. Was bloody awful tbh. Weirdly the first AZ vaccination stopped it, it put me in bed for a day or two and then when I got up I started noticing I was feeling better than normal, but didn't really believe it was gone away. But it's now been months since the jab and I haven't had a single episode with my heart and my energy is way up. The definitely need to do a little more research into this because my doctors were basically telling me it was just how I was going to be, and it does seem like, however accidentally, there was a solution to be had.

andrekandre 5y ago
exactly the same here! i thought i was gonna just croak at some point, with doctors just saying "i need to de-stress" or "eat better" do you know what virus you had originally that did that to you?
- bengale 5y ago
  Yeah I was convinced I was dying, I went to the hospital at first because I thought I was having a heart attack. All they said to me from the blood test was that it showed I was fighting a virus, but I don't know how they would have gone about working out which one, they just told me to get some rest. I basically slept for the 4 weeks, lost a load of weight because I had zero appetite, was a crazy time. Afterwards I kept going back about the heart palpitations and they did all sorts of tests and scans but kept basically telling me the same, destress, eat better, get more sleep, etc. When I told them I was tired all the time they told me everyone feels like that. But now it's cleared I can tell there was definitely something abnormal going on.
  - andrekandre 5y ago
    thanks for the reply, its appreciated > All they said to me from the blood test was that it showed I was fighting a virus, but I don't know how they would have gone about working out which one, they just told me to get some rest. for myself, i went and got checked for natural antibodies for covid, thinking it was caused by asymptomatic (or long) covid or something... but the result was negative... maybe ill check for some others (west nile etc) if i had time. > But now it's cleared I can tell there was definitely something abnormal going on. one clue for me that also supports some kind of virus/infection caused autoimmune issue, was that i had a slightly higher temperature for several months and an elevated RF level (indicates overall inflammation) when doing my health checkups... that is, until getting the vaccine: full-stop no joke those issues all disappeared. i know it sounds crazy to some people, but thats my experience... and thanks for sharing yours, its great to be able to exchange notes with someone who may have had the same issue