4 ms·

Folks, I would strongly suggest getting a DNA test. There are mutations that are highly suggestive of susceptibility to kidney disease. Know your status and eat

Folks, I would strongly suggest getting a DNA test. There are mutations that are highly suggestive of susceptibility to kidney disease. Know your status and eat a kidney friendly diet and make sure you get frequent blood checks if you’re on drugs that may impact your kidneys (e.g. lithium, amphetamines, etc).

yellow_lead 5y ago
Any DNA test providers you recommend? Preferably one that deletes your data / DNA after you're done with it.
- _xri0 5y ago
  See https://www.intellxxdna.com/ https://www.intellxxdna.com/
  - nextaccountic 5y ago
    Do they store the dna in a database that law enforcement could, perhaps with a subpoena, have access to? Here's a video how law enforcement can get a match on a dna database through any of your relatives that did a dna test there. https://www.youtube.com/watch?v=KT18KJouHWg https://www.youtube.com/watch?v=KT18KJouHWg This kind of thing creates a chilling effect in which people avoid getting the medical help they need just to not contribute with a permanent genetic database. This kind of stuff is exactly why HIPAA exists. Also: why did they give you a summary, but gave the doctors a full report? Could you get the full report if you asked them?
    - jdavis703 5y ago
      > why did they give you a summary, but gave the doctors a full report? Could you get the full report if you asked them? If the tests aren’t FDA approved they probably don’t want to risk the regulatory ire that 23&Me encountered.
      - nextaccountic 5y ago
        But then why the doctors have access to it?
- jdavis703 5y ago
  I used 23&Me. They’re simple and cheap. And I’m not concerned about protection from legal searches here. We shed DNA everywhere we go. Law enforcement can go as far as picking up things like discarded cigarette butts a suspect tosses out their car to get a DNA match.
  - yellow_lead 5y ago
    I don't think that's a fair comparison. Your DNA in a database is much different than your DNA needing to be individually targeted to be sampled.
blitzar 5y ago
> getting a DNA test still a hard pass from me, I dont trust the 23 and me's of this world with my genetic code. > get frequent blood checks Do this either way, prevention is better than any cure, and monitoring is the first step to prevention. Elizabeth Holmes vision was not entriely stupid, when combined with batting her eyelashes, was what lured so many people in.
- mtberatwork 5y ago
  No, you do NOT need to do frequent blood checks. Find yourself a doctor that you feel comfortable with, do yearly physicals and consult with them for anything in-between. Excessive testing will needlessly lead you into a spiral of health anxiety.
  - blitzar 5y ago
    Every 3-6 months tested and annual physical. Every physical I have ever had has included bloods - so it seems we agree on that frequency. Done it for 10 years and 0 spirals of health anxiety, reduced medications and improved health. Annecdotal perhaps, but every person I know that undertakes a similar regime suffers far far less from health anxiety than those that dont. However, the health anxious tend to be sure they have cancer/diabetes/brain tumors based on their google searches but refuse to go to a doctor and get a checkup.

yellow_lead 5y ago

Any DNA test providers you recommend? Preferably one that deletes your data / DNA after you're done with it.

_xri0 5y ago
See https://www.intellxxdna.com/ https://www.intellxxdna.com/
- nextaccountic 5y ago
  Do they store the dna in a database that law enforcement could, perhaps with a subpoena, have access to? Here's a video how law enforcement can get a match on a dna database through any of your relatives that did a dna test there. https://www.youtube.com/watch?v=KT18KJouHWg https://www.youtube.com/watch?v=KT18KJouHWg This kind of thing creates a chilling effect in which people avoid getting the medical help they need just to not contribute with a permanent genetic database. This kind of stuff is exactly why HIPAA exists. Also: why did they give you a summary, but gave the doctors a full report? Could you get the full report if you asked them?
  - jdavis703 5y ago
    > why did they give you a summary, but gave the doctors a full report? Could you get the full report if you asked them? If the tests aren’t FDA approved they probably don’t want to risk the regulatory ire that 23&Me encountered.
    - nextaccountic 5y ago
      But then why the doctors have access to it?
jdavis703 5y ago
I used 23&Me. They’re simple and cheap. And I’m not concerned about protection from legal searches here. We shed DNA everywhere we go. Law enforcement can go as far as picking up things like discarded cigarette butts a suspect tosses out their car to get a DNA match.
- yellow_lead 5y ago
  I don't think that's a fair comparison. Your DNA in a database is much different than your DNA needing to be individually targeted to be sampled.

blitzar 5y ago

> getting a DNA test still a hard pass from me, I dont trust the 23 and me's of this world with my genetic code. > get frequent blood checks Do this either way, prevention is better than any cure, and monitoring is the first step to prevention. Elizabeth Holmes vision was not entriely stupid, when combined with batting her eyelashes, was what lured so many people in.

mtberatwork 5y ago
No, you do NOT need to do frequent blood checks. Find yourself a doctor that you feel comfortable with, do yearly physicals and consult with them for anything in-between. Excessive testing will needlessly lead you into a spiral of health anxiety.
- blitzar 5y ago
  Every 3-6 months tested and annual physical. Every physical I have ever had has included bloods - so it seems we agree on that frequency. Done it for 10 years and 0 spirals of health anxiety, reduced medications and improved health. Annecdotal perhaps, but every person I know that undertakes a similar regime suffers far far less from health anxiety than those that dont. However, the health anxious tend to be sure they have cancer/diabetes/brain tumors based on their google searches but refuse to go to a doctor and get a checkup.