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I spent the past four years working as a data scientist for a healthcare company on population health initiatives, and started building out a body of research a
by reureu 5y ago
I spent the past four years working as a data scientist for a healthcare company on population health initiatives, and started building out a body of research around how to engage clinicians using data (among other things, through dashboards). That's a bit different than the article, but one of my key learnings was that dashboards are often incredibly ineffective and only promulgated by well-intentioned engineers, based on what they would want to see if they were a clinician.
I worked with a behavioral economist, and we started running RCTs looking at different approaches to sharing data, and found that dashboards led to less engagement, when there was engagement it was more likely to drive ineffective interventions, and generally our dashboard groups had worse patient outcomes. Non-dashboard approaches had 20x better engagement and anywhere from 20-100% better patient outcomes (depending on the condition).
Unfortunately, both of us left the company when a bunch of engineers moved in, scoffed at our work, and immediately said "doctors need to be able to slice and dice their data" -- which, by every measure we had tested, is simply not true. But the "mission control" style thinking, where you have tons of dials and numbers flashing on a screen, pervaded because it "feels" like the right answer despite being the objectively wrong one.
- lazyasciiart 5y agoSounds interesting, is any of that body of research available publicly?
- reureu 5y agoSome, not all. I'm hesitant to directly post links on here since it will out both me and the company I worked for. If you're interested in this kind of work, you should check out the conference proceedings for AMIA (amia.org)
- kfarr 5y agoCurious if you have any examples of "Non-dashboard approaches" to compare and contrast?
- reureu 5y agoWe tried a couple of different approaches: tableau reports, emailing static data to providers, sending spreadsheets of patient-level data, and building a Facebook or Twitter style feed. And then had different variations on each, and would run trials comparing different approaches. We pretty quickly found that sending data ("push") was way more effective at engagement than just having a tableau report they could go to ("pull"), even when that dashboard was linked directly within the EHR, didn't require a login, and was contextualized for the provider (basically as low friction as you could get-- they would actually venture into it 1-2 times per year). We ran a trial where we changed how we presented data: either in terms of number of patients ("screen 20 people for depression this week") or in terms of quality rates ("your depression screening rate is 40% and going up"). Keeping the data in terms of patients led to ~20% improved screening, and in the surveys led to providers expressing more trust in the data (although, they also were more likely to say they "didn't have enough data to do [their] job", despite actually doing their job better than the other group). So then we took that idea for depression screening and extended it from depression screening to chronic disease management (where the specific task for the provider is much more variable). So we had one arm where we gave them access to data marts and trained them on how to "slice and dice" the data, and then compared that against a newsfeed that had the data pre-"sliced and diced". The engagement was higher in the newsfeed group. Interestingly, the only thing the "slice and dice" group seemed to do was look for patients without a primary care doc designed in the EHR and just assign them-- in evaluating the outcomes for this, that was the single least effective intervention they could do to improve chronic disease care (and this was validated in a follow-up study looking explicitly at the impact of PCP-assignment on patient care). So, our "newsfeed" arm ended up with, on average, around 60% better outcomes than the "slice and dice" arm. What's funny is that through all of this, some of the leaders would also say "we need more data!!" But when we'd build a tableau report for them, they'd use it once or twice and then never again. Or, in one case, the leader would actually use it for ineffective purposes ("we have to assign them all PCPs!!") or for things that are easily automated ("we're going to email each of our uncontrolled hypertensive patients"). I firmly believe that for doctors and data, you need to have clearly defined objectives: the goal should never be "give them access to data", but rather should be something like "make providers feel like they have the data necessary to do their job" and "improve quality rates through targeted provider intervention." Start from those first principles, and validate your assumptions at each step. I'm confident your solution won't end up with tableau.
- vitovito 5y agoAre you me? I also built out a body of research in a healthcare company about how to engage clinicians using data, that stopped us from making some mistakes until we got acquired. No doctor (or chief of staff, or chief medical officer, or anyone besides an actual data analyst) will slice and dice their data. Doctors won't even listen to a non-peer clinician discuss data with them, let alone their administrators. In my timeline, I told the engineering team that all of their work was almost certainly for naught, that all the research said this product would completely fail, and we were basically just doing it for managerial and contractual obligations. This gave engineering the freedom to use whatever technologies and conduct whatever technical experiments they wanted, since no-one would ever use the product, and it'd likely be shut down soon after launch for disuse. A key hospital partner gave us a couple dozen docs to test it with. I interviewed them about how they measured their work and impact, and the data they used to improve their craft and outcomes. I asked them to review every measure on the dashboard, explain their understanding of it, and explain how their work or behavior would change based on that. Almost to a person, the doctors said there was nothing of use to them there, as the research predicted. Some of these doctors were on the committee that specified the measures they would themselves be seeing. The product was launched with great managerial acclaim, and promptly sunset 12 months later from disuse.
- reureu 5y agoI dunno, but it sounds like we should get a beer sometime. Not sure if this resonates also, but the engineers that took over all came from outside healthcare and had a strong "I'm going to apply what I know from Ticketmaster to solve healthcare!" mentality. Those of us that have 15 years of experience in healthcare would, at best, have a 10 minute "knowledge sharing" meeting with the engineering and product managers. And then we'd sit back and watch them make some really naive mistakes. [to be clear, I'm not about gatekeeping people from being involved in health tech, but rather I'm just exhausted at interacting with people with no self-awareness about the amount of things they don't know about a particular domain] I'm still a bit bummed because I think we were actually just starting to get to some really cool, actually innovative, population health approaches that seemed effective for both improving outcomes and minimizing provider burnout. :(
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- matheusmoreira 5y agoCan you provide concrete examples of data that would be shown in such dashboards? I'm having trouble visualizing it.
- reureu 5y agoThe dashboards would show generally quality measure performance, often outcomes but sometimes process measures. So, things like "percent of eligible patients who have had cervical cancer screening" or "percent of hypertensive patients who have controlled blood pressure" (outcome measure), and perhaps "percent of patients missing source documentation" or "percent of patients with no appointment scheduled" (process measures). The initial tableau report would let you drill down to see which patients were non-compliant for that particular quality measure, presumably allowing them to follow-up as needed. By the time I left, we had a newsfeed that would just tell them what needed to happen ("you have N patients who have uncontrolled hypertension with no follow-up appointment booked. Consider messaging them to book an appointment."). No rates, just that story in their feed, with a link to the list of patients that corresponds to the "N patients". That would all be thrown into an email and sent weekly, and we'd track when they opened, clicked, and what ended up happening with the individual patients.
- matheusmoreira 5y agoThat's interesting. In my country that's usually handled by clinic administration and secretaries. I assume the presence of private medical information such as presence of hypertension, controlled and uncontrolled, etc. makes it necessary for doctors to do it. In my experience, when patients have uncontrolled chronic disease a follow up appointment is automatically set up. Doctors prescribe medication and ask the patient to return after some time so they can be reevaluated. When they miss appointments, clinic administration knows and can follow up.
- robbles 5y agoDo you think there's an alternate approach to showing data that would be effective? I can definitely buy the idea that showing a bunch of fancy charts doesn't help most medical professionals, but I don't like the idea of giving up on trying to surface more data. Or is that what you're referring to as "non-dashboard approaches"?
- reureu 5y agoI wrote a longer response to another comment with examples of some of the experiments and learnings. But, yes, I think there are effective alternatives, but I think it starts with being really clear on what your success measures are. Do you want to maximize patient outcomes? Do you want providers to feel engaged (or, perhaps, actually engage) with data? Do you want to minimize provider burnout? I was always surprised by how few clinical and tech leaders could actually articulate what the goals were-- it'd often just be "we need providers to have more data!", which I suspect isn't actually what your goal is. The tldr was that telling providers directly what you want, generally in an emailed newsfeed-style format was the most effective at improving actual outcomes. No slicing and dicing. No graphs. No comparisons. Just "hey, look at these 6 uncontrolled hypertensive patients, and follow-up with any that need follow-up." Also, to caveat: I'm talking about how to engage the worker-bee providers. Not clinical leadership. Not the quality team. Not the data science/analyst team. Providers who are super busy with patient care, but also expected to manage patients between visits. Basically every experiment we ran favored the most direct, no frills, least effort approach to look at data. Which, coincidentally, was the exact opposite of what the engineering teams wanted to build :-/
- troelsSteegin 5y agoWith respect to the tldr - so, on one arm, so to speak, is an interface where clinicians could use different combinations of measures to identify patients who might need some kind of intervention, like follow up attention. Then the other side is an analytic system that uses a specific set of measures, etc, and then messages clinicians with a recommended set of actions? In the first case, the clinicians have to do analytical work (slice, dice) towards understanding the population of patients. That sounds more like epidemiology... In the latter case, how is it that clinicians will trust the recommender? Is it understood that there is a clinical rationale or authority behind the algorithm? It sounds like "uncontrolled" in this case is based on a measure that clinicians trust. I think of dashboards as potentially good for monitoring outcomes against expectations, EDA as potentially good for focusing attention on subpopulations, and recommenders as potentially good for efficiently allocating action. In a broad way what you described is a monitoring system that pushes recommended actions out to doers. I'd venture that with busy clinicians that that needs to be pretty accurate, too, and/or that recommendations need both explicit justification and a link to collateral information.
- dmix 5y agoThere’s so many vanity metrics in business related data science that I suspect when the visualization gets blamed instead of what is being visualized.