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As a potentially interesting data point for those not keeping up with privacy and data processing in the UK, next week (1 September) also marks the time the NHS
by Silhouette 5y ago
As a potentially interesting data point for those not keeping up with privacy and data processing in the UK, next week (1 September) also marks the time the NHS will opt everyone into sharing their personal health records for "research and planning" purposes by default (this is about the GPDPR, which is obviously not named confusingly similarly to the GDPR).
Details about what this really means, who will get access to the data, and what regulatory or legal consequences they will face if it's abused are disturbingly vague. In theory, there has already been a two-month delay in doing this due to concerns the first time around about a lack of public awareness. I have seen exactly zero further public information campaigning on the subject during the additional time.
Right now, as someone who believes strongly in the importance of personal privacy and restricting the sharing of sensitive personal data, I am more concerned about that imminent development than this one.
For anyone in the UK who is concerned about that, there is still just about time to opt out via NHS Digital's online system. Make sure you also notify your GPs, as it seems there will now be two systems involved and they require separate opt-outs.
(I'm using "UK" here, but if this affects you, please be aware that the rules may differ depending on whether you're in England, Scotland, etc.)
- jjgreen 5y agoThat's actually been pushed down the road: https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/general-practice-data-for-planning-and-research/transparency-notice https://digital.nhs.uk/data-and-information/data-collections...
- Silhouette 5y agoThank you. I'd somehow missed that development. It's difficult to see how the other part (run centrally by NHS Digital based on the GP data) could go ahead without this part in place, so maybe they really did listen to reason and back down until they've got proper measures in place. That would actually be quite reassuring in connection with today's announcement that we're discussing here. If those in government really have understood that there are some lines that shouldn't be crossed when it comes to privacy and personal data and they really are genuinely interested in getting rid of the excessive red tape that some of the EU rules do impose on anyone working with personal data, this might be a positive story after all.
- pacifika 5y agoNot Scotland, perhaps only England.