On reading this article, it must be so hard for parents to see a way forward for treating their child's condition, but be roadblocked by either funding, or stud

On reading this article, it must be so hard for parents to see a way forward for treating their child's condition, but be roadblocked by either funding, or study participation criteria. If I observed my child have such a profound change as Mateo did, I think I might be incentivised to continue seeking these drugs for their treatment. I know that it would be absolutely a criminal act to purchase ketamine illegally and administer it to my child, or to find a shady doctor who prescribe it off-label. I wonder how often these scenarios come up? And how often parents go out of their way to seek unapproved medicines (much like the AIDS Buyer's Clubs of the 90s).