3 ms·
Honestly, I'd be lying if I said I don't agree. We didn't know about half of my daughter's conditions until after she was born. We lived in Indiana, and had tr
by kingsloi 5y ago
Honestly, I'd be lying if I said I don't agree.
We didn't know about half of my daughter's conditions until after she was born. We lived in Indiana, and had treatment in Illinois, because of whatever laws, we were rushed into deciding whether to continue with the pregnancy, but after I had seen her little face/profile on the CT scan, I knew I had to meet her, and I loved every single moment with my little girl, I'd do it again if I could have more time with her.
But in hindsight, watching her battle through her 8 months, the 9 surgeries, the horrific recoveries, the constant diagnosis', watching her code in front of me and the nurse's chest compressions break her ribs in the process. We tried to make her life as beautiful as we could, but she really suffered, more than I or anyone could imagine, and now I have the imagine of her last breathe imprinted in my head, and watching videos of her in the hospital and hearing the beeps and alarms is super triggering.
My wife and I were lucky that we made it, considering parents of children with disabilities commonly result in divorce. It was one of the most horrific things I/my wife have ever gone through, and we've both lost parents as teens. I know many couples/relationships/children aren't so lucky.
Anyway, I'm going to advocate for:
- more testing when abnormalities are found at 20-22 week scan
- extend termination limits to allow for further testing to be carried out
- advocate for easier access to terminations, support parents on how difficult the process will be, whether they can handle it, resources on when times are difficult, etc
- regardless of my daughter's diagnosis/disabilities, she didn't qualify for Medicaid off the bat, she actually passed away without any government assistance, even though she severely disabled. So obviously, advocate for children of disabilities and everything wrong with this post