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And yet, while many american insurers cover expensive gene therapies, European autorhities simply pretend the drugs are unsafe and refuse to cover them. This s
by iammisc 5y ago
And yet, while many american insurers cover expensive gene therapies, European autorhities simply pretend the drugs are unsafe and refuse to cover them.
This sort of thing goes both ways
- Jenk 5y agoGene therapy is available on the NHS in the UK. And the American system that is systematically bankrupting sick people for profit is a damn sight less perfect than the European authorities issues. Yes, it goes both ways, but it goes much further one way over the other.
- iammisc 5y ago> Yes, it goes both ways, but it goes much further one way over the other. That's fair. For gene therapy, I was referring to Zolgensma, which was delayed substantially in Europe and forced many to seek treatment in America. The delay was mainly due to cost savings, and the delay was clinically meaningful (since treatment is time sensitive).
- Jenk 5y agohttps://www.england.nhs.uk/2021/03/nhs-england-strikes-deal-on-life-saving-gene-therapy-drug-that-can-help-babies-with-rare-genetic-disease-move-and-walk/ https://www.england.nhs.uk/2021/03/nhs-england-strikes-deal-... That's available too.
- iammisc 5y agoI acknowledged this: > delayed substantially in Europe In the meantime, between when FDA approved v NHS, children became debilitated.
- Jenk 5y agoFair dos. I haven't looked but is it possible there are some vice-versa examples? Anyway. At least with the NHS you won't be expected to pay the millions per dose fees, via insurance or other means.