3 ms·

This sounds like dysautonomia. I have dysautonomia, which I had long before (probably) getting COVID-19. I have a rare form of dysautonomia. But, dysautonomia

This sounds like dysautonomia. I have dysautonomia, which I had long before (probably) getting COVID-19. I have a rare form of dysautonomia. But, dysautonomia does happen, relatively frequently, as post-viral cases. The good news is that post-viral dysautonomia has high potential for improving and even (realistically) going away. Rest will be the best treatment. Check my profile if you want to email me or want help.

treeman79 5y ago
I acquired dysautonomia from toxic exposure. Turned out to be an underlying autoimmune disorder (Sjogrens) and a clotting disorder “factor 5 Leiden” The exposure triggered both from mild barely noticeable problems to I was completely disabled. Took years to figure out it out. When I got covid it was basically the same event again. Took months for body to calm down again.
- disabled 5y ago
  Yep, I am in the exact same position as you. I lost at least a year of my life due to this post-viral syndrome. I am back to where I was prior to getting COVID-19, though. When I was really sick in March 2020, I thought "wow, I haven't been this sick in a long time". It really was like going back to square one. It was super scary, too, given the health problems that I have. I have autoimmune autonomic ganglionopathy (autoimmune dysautonomia), which is believed to have caused my type 1 diabetes (autoimmune and insulin-dependent). It is also believed to have caused other endocrine problems and other neurological problems (I have another immune-mediated neurological disease affecting my peripheral nervous system). Anyways, autoimmune autonomic ganglionopathy is very rare, and I have the antibodies (about half of people do not), so I am tremendously lucky. Anyways, I would be interested in chatting with you. If you want to do so, my email is in my profile information. I am very resourceful and I have tips.

treeman79 5y ago

I acquired dysautonomia from toxic exposure. Turned out to be an underlying autoimmune disorder (Sjogrens) and a clotting disorder “factor 5 Leiden” The exposure triggered both from mild barely noticeable problems to I was completely disabled. Took years to figure out it out. When I got covid it was basically the same event again. Took months for body to calm down again.

disabled 5y ago
Yep, I am in the exact same position as you. I lost at least a year of my life due to this post-viral syndrome. I am back to where I was prior to getting COVID-19, though. When I was really sick in March 2020, I thought "wow, I haven't been this sick in a long time". It really was like going back to square one. It was super scary, too, given the health problems that I have. I have autoimmune autonomic ganglionopathy (autoimmune dysautonomia), which is believed to have caused my type 1 diabetes (autoimmune and insulin-dependent). It is also believed to have caused other endocrine problems and other neurological problems (I have another immune-mediated neurological disease affecting my peripheral nervous system). Anyways, autoimmune autonomic ganglionopathy is very rare, and I have the antibodies (about half of people do not), so I am tremendously lucky. Anyways, I would be interested in chatting with you. If you want to do so, my email is in my profile information. I am very resourceful and I have tips.