3 ms·
My friend was diagnosed with ME/CFS after a stroke at age 27. The term "myalgic encephalitis" is the preferred term, as I understand it, because the public seem
by Eric_WVGG 5y ago
My friend was diagnosed with ME/CFS after a stroke at age 27. The term "myalgic encephalitis" is the preferred term, as I understand it, because the public seems to be unable to take a phrase like "chronic fatigue syndrome" seriously. In America at least, our puritan personality insists that "fatigue" is a sign of laziness.
If there's an upside to Covid-19, I hope that it's that the symptoms of ME/CFS are taken more seriously by the public and scientific community, and that the results of further research on "long covid" are transferrable.
Those here who are experiencing Long Covid symptoms should keep an eye on a drug called Ampligen. It is the first and only drug that has been approved for the treatment of ME/CFS, but thus far only in Argentina. There are a couple ongoing studies in the United States (one in Lake Tahoe), but no FDA approval yet. Recently, Ampligen has been put into trials for the treatment of Long Covid as well.
https://en.wikipedia.org/wiki/Rintatolimod https://en.wikipedia.org/wiki/Rintatolimod
https://www.clinicaltrialsarena.com/news/company-news/aim-doses-first-patient/ https://www.clinicaltrialsarena.com/news/company-news/aim-do...
https://www.proactiveinvestors.com/companies/news/921928/aim-immunotech-wins-approval-to-import-chronic-fatigue-syndrome-drug-ampligen-to-argentina-921928.html https://www.proactiveinvestors.com/companies/news/921928/aim...