3 ms·

I am having daily heart palpitations and they are almost unbearable now. Sometimes I wake up and feel fine almost all day but not a day has gone by in the past

I am having daily heart palpitations and they are almost unbearable now. Sometimes I wake up and feel fine almost all day but not a day has gone by in the past two months where I don't have some kind of chest discomfort around my sternum/xiphoid process. I have had a whole bunch of scans and everything is normal. I will be having an endoscopy next week to hopefully get to the bottom of it. I am 'hoping' it is something simple and obvious that they can treat. So far everything ends up being "well it's not $insertMedicalCondition so let's check for $insertSomeOtherMedicalCondition" :(

fragmede 5y ago
Have you managed to get medication (aka beta blockers) for the palpations? I am not a doctor but I strongly recommend getting a doctor to prescribe you some if you haven't already. What's been particularly frustrating with long covid is because it's so new, I've had to have awkward pushy conversations with doctors to get me treatment I deserve. You can't get high off beta blockers, which helps assuage my feelings of being an addict engaging in drug seeking behavior, simply trying to get my heart rate under control, but the medical industry has largely failed patients here. The only reprieve is that enough healthcare professionals also got sick, so the fact that there's nothing that shows up on scans of my heart isn't taken as fact that there's nothing wrong with it.
- satysin 5y ago
  Last week my doctor prescribed me something called Stresam (aka Etifoxine). Apparently it is a lot like the benzo Lorazepam (Ativan) but without the whole benzo addiction problem. I had never heard of it nor know anyone on it before but apparently it is good. Too early for me to say if it is personally. I want to avoid any kind of addictive medication if possible.
disabled 5y ago
This sounds like dysautonomia. I have dysautonomia, which I had long before (probably) getting COVID-19. I have a rare form of dysautonomia. But, dysautonomia does happen, relatively frequently, as post-viral cases. The good news is that post-viral dysautonomia has high potential for improving and even (realistically) going away. Rest will be the best treatment. Check my profile if you want to email me or want help.
- treeman79 5y ago
  I acquired dysautonomia from toxic exposure. Turned out to be an underlying autoimmune disorder (Sjogrens) and a clotting disorder “factor 5 Leiden” The exposure triggered both from mild barely noticeable problems to I was completely disabled. Took years to figure out it out. When I got covid it was basically the same event again. Took months for body to calm down again.
  - disabled 5y ago
    Yep, I am in the exact same position as you. I lost at least a year of my life due to this post-viral syndrome. I am back to where I was prior to getting COVID-19, though. When I was really sick in March 2020, I thought "wow, I haven't been this sick in a long time". It really was like going back to square one. It was super scary, too, given the health problems that I have. I have autoimmune autonomic ganglionopathy (autoimmune dysautonomia), which is believed to have caused my type 1 diabetes (autoimmune and insulin-dependent). It is also believed to have caused other endocrine problems and other neurological problems (I have another immune-mediated neurological disease affecting my peripheral nervous system). Anyways, autoimmune autonomic ganglionopathy is very rare, and I have the antibodies (about half of people do not), so I am tremendously lucky. Anyways, I would be interested in chatting with you. If you want to do so, my email is in my profile information. I am very resourceful and I have tips.

fragmede 5y ago

Have you managed to get medication (aka beta blockers) for the palpations? I am not a doctor but I strongly recommend getting a doctor to prescribe you some if you haven't already. What's been particularly frustrating with long covid is because it's so new, I've had to have awkward pushy conversations with doctors to get me treatment I deserve. You can't get high off beta blockers, which helps assuage my feelings of being an addict engaging in drug seeking behavior, simply trying to get my heart rate under control, but the medical industry has largely failed patients here. The only reprieve is that enough healthcare professionals also got sick, so the fact that there's nothing that shows up on scans of my heart isn't taken as fact that there's nothing wrong with it.

satysin 5y ago
Last week my doctor prescribed me something called Stresam (aka Etifoxine). Apparently it is a lot like the benzo Lorazepam (Ativan) but without the whole benzo addiction problem. I had never heard of it nor know anyone on it before but apparently it is good. Too early for me to say if it is personally. I want to avoid any kind of addictive medication if possible.

disabled 5y ago

This sounds like dysautonomia. I have dysautonomia, which I had long before (probably) getting COVID-19. I have a rare form of dysautonomia. But, dysautonomia does happen, relatively frequently, as post-viral cases. The good news is that post-viral dysautonomia has high potential for improving and even (realistically) going away. Rest will be the best treatment. Check my profile if you want to email me or want help.

treeman79 5y ago
I acquired dysautonomia from toxic exposure. Turned out to be an underlying autoimmune disorder (Sjogrens) and a clotting disorder “factor 5 Leiden” The exposure triggered both from mild barely noticeable problems to I was completely disabled. Took years to figure out it out. When I got covid it was basically the same event again. Took months for body to calm down again.
- disabled 5y ago
  Yep, I am in the exact same position as you. I lost at least a year of my life due to this post-viral syndrome. I am back to where I was prior to getting COVID-19, though. When I was really sick in March 2020, I thought "wow, I haven't been this sick in a long time". It really was like going back to square one. It was super scary, too, given the health problems that I have. I have autoimmune autonomic ganglionopathy (autoimmune dysautonomia), which is believed to have caused my type 1 diabetes (autoimmune and insulin-dependent). It is also believed to have caused other endocrine problems and other neurological problems (I have another immune-mediated neurological disease affecting my peripheral nervous system). Anyways, autoimmune autonomic ganglionopathy is very rare, and I have the antibodies (about half of people do not), so I am tremendously lucky. Anyways, I would be interested in chatting with you. If you want to do so, my email is in my profile information. I am very resourceful and I have tips.