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> Reuters found no evidence BGI violated patient privacy agreements or regulations. However, the privacy policy on the NIFTY test’s website says data collected
by shkkmo 5y ago
> Reuters found no evidence BGI violated patient privacy agreements or regulations. However, the privacy policy on the NIFTY test’s website says data collected can be shared when it is “directly relevant to national security or national defense security” in China.
> Beijing made clear in a 2019 regulation that genetic data can be a national security matter, and since 2015 it has restricted foreign researchers from accessing gene data on Chinese people. In contrast, the United States and Britain give foreign researchers access to genetic data, as part of open science policies.
This not the privacy debacle people are making it out to be, since names are not collected, this is far less of a privacy invasion than 23andMe since that data base can extrapolate and identify you without your consent based on your relatives.
This is much more of either (which depends on your perspective):
an open science and data access issue
or a national security issue