10 ms·
That sounds like it would be a trivial to de-anonymize. Also I’d be curious how good medical experts actually think the data is. In my field i find that data t
by rdtwo 5y ago
That sounds like it would be a trivial to de-anonymize.
Also I’d be curious how good medical experts actually think the data is. In my field i find that data that looks legit is often actually bad enough to the point of near uselessness because the incentives aren’t aligned with collecting accurate data
- marcinzm 5y agoThe incentives are with collecting data that insurance companies will not reject your payments over. If an insurance company noticed you're mis-billing then you lose money. They may request full medical records of patients to verify. Which incentives generally clean data although there are biases such as up billing and spurious diagnosis to get medication covered. Medical records themselves are a mess often but billing data is better since a lot of money is on the line. >That sounds like it would be a trivial to de-anonymize. In theory yes if you joined to other identified data sets but in practice doing so makes it a massive HIPAA violation with very large government enforce penalties. There's also enough contractual sanity checking and costs that no one who gets access would bother.
- marcinzm 5y agoI'd like to add that anonymized billing data has helped a lot of companies make a lot money. That however is separate from helping patients. Helping pharma companies better market medications to doctors makes a lot of money but is arguably a negative for patients.