2 ms·

btw this is an invitation for lawyers or legal experts to prove me wrong so i can go build this. i personally found a need for this type of site a while back f

btw this is an invitation for lawyers or legal experts to prove me wrong so i can go build this. i personally found a need for this type of site a while back for myself, of course i would take each person's feedback with a (larger) grain of salt and still consult my doctors.

Mz 15y ago
I'm not a lawyer but I do belong to a number of health lists and I do run a health site and my day job is in a related industry, so I get ongoing training and exposure to some of the laws and these types of issues. a) All email support groups (that I belong to) have huge disclaimers at the bottom of every email announcing something like "This is a free and open discussion of health issues. This is not medical advice. Please consult your doctor...blah blah blah" to try to cover their butts. b) A published author in the alternative health space actively encouraged me to adapt his own written disclaimer to put on my website to try to help me cover my butt. He has at least once been dragged before a medical review board/court/some such because of the information he disseminates. So, yeah, it's a real problem. c) Privacy laws are a big deal and there are very big problems with encouraging people to post pics of symptoms, including how much of the body to show. I have seen a photo of a naked child (from the back) covered in a rash posted on a group and I think it was handled carefully by someone knowledgeable (the woman who posted it was herself a lawyer, so I imagine she knew what she was doing) but I can see this space being open to serious pitfalls in that regard. d) I went and did the very rude thing of getting myself healthy when that is supposed to be impossible given my diagnosis. I have been repeatedly told that I am engaging in irresponsible, dangerous, evil behavior for talking about how I accomplished that, even though the path I followed is really incredibly conservative (for example: get informed about food chemistry because everything you put in your mouth has an impact on your body chemistry). So, in short, there are some very big problems/challenges with your idea. Your concerns are real concerns, not neurotic worries at all. That doesn't mean it can't be done. But, no, there is no magic wand of "I talked to a lawyer and it's all okay now". You would have a lot of work to do to make this at all viable.
- epynonymous 15y ago
  thanks mz, this has been incredibly informative, i agree that there's no magic bullet hand waving that could approve/disapprove this, and thanks for sharing your experiences. i was thinking of the goal of this site, it would be all non-profit in hopes of helping mankind to bring an alternative for the machine that is today's modern medical system. i will noodle on this a bit more, the last thing i want is someone to be harmed by something that i've done, especially if the goal is to help. and anything that gets big, even if it's non-profit would be a target for litigation.
  - Mz 15y ago
    thanks mz No problem. goal of this site: helping mankind to bring an alternative for the machine that is today's modern medical system Yeah, I'm working on a piece of that. It's slow going to win mindshare in this space. Alternative stuff tends to have a bad rep in a lot of circles. There's lots of challenges with that piece of it alone. the last thing i want is someone to be harmed by something that i've done, especially if the goal is to help. Ditto. I have often contemplated taking down my website. But given how deadly my condition is, I feel doing nothing is the bigger danger. :-/ Peace.

Mz 15y ago

I'm not a lawyer but I do belong to a number of health lists and I do run a health site and my day job is in a related industry, so I get ongoing training and exposure to some of the laws and these types of issues. a) All email support groups (that I belong to) have huge disclaimers at the bottom of every email announcing something like "This is a free and open discussion of health issues. This is not medical advice. Please consult your doctor...blah blah blah" to try to cover their butts. b) A published author in the alternative health space actively encouraged me to adapt his own written disclaimer to put on my website to try to help me cover my butt. He has at least once been dragged before a medical review board/court/some such because of the information he disseminates. So, yeah, it's a real problem. c) Privacy laws are a big deal and there are very big problems with encouraging people to post pics of symptoms, including how much of the body to show. I have seen a photo of a naked child (from the back) covered in a rash posted on a group and I think it was handled carefully by someone knowledgeable (the woman who posted it was herself a lawyer, so I imagine she knew what she was doing) but I can see this space being open to serious pitfalls in that regard. d) I went and did the very rude thing of getting myself healthy when that is supposed to be impossible given my diagnosis. I have been repeatedly told that I am engaging in irresponsible, dangerous, evil behavior for talking about how I accomplished that, even though the path I followed is really incredibly conservative (for example: get informed about food chemistry because everything you put in your mouth has an impact on your body chemistry). So, in short, there are some very big problems/challenges with your idea. Your concerns are real concerns, not neurotic worries at all. That doesn't mean it can't be done. But, no, there is no magic wand of "I talked to a lawyer and it's all okay now". You would have a lot of work to do to make this at all viable.

epynonymous 15y ago
thanks mz, this has been incredibly informative, i agree that there's no magic bullet hand waving that could approve/disapprove this, and thanks for sharing your experiences. i was thinking of the goal of this site, it would be all non-profit in hopes of helping mankind to bring an alternative for the machine that is today's modern medical system. i will noodle on this a bit more, the last thing i want is someone to be harmed by something that i've done, especially if the goal is to help. and anything that gets big, even if it's non-profit would be a target for litigation.
- Mz 15y ago
  thanks mz No problem. goal of this site: helping mankind to bring an alternative for the machine that is today's modern medical system Yeah, I'm working on a piece of that. It's slow going to win mindshare in this space. Alternative stuff tends to have a bad rep in a lot of circles. There's lots of challenges with that piece of it alone. the last thing i want is someone to be harmed by something that i've done, especially if the goal is to help. Ditto. I have often contemplated taking down my website. But given how deadly my condition is, I feel doing nothing is the bigger danger. :-/ Peace.