Genetic testing for clotting. Autoimmune work up. Spinal tap for pressure. Make a list every symptom, and what affects your symptoms. Take it to every kind o

Genetic testing for clotting. Autoimmune work up. Spinal tap for pressure. Make a list every symptom, and what affects your symptoms. Take it to every kind of specialist. Then keep repeating. Take an advocate. I would explain stuff, could see they had mentally written me off. The wife would start bawling. This would wake them up, and they would dig further. A neuro-ophthalmologist was reading my list. Looked up and declared I had Sjogrens. He was right. Now he missed the clotting disorder. Then have a clot in your lungs. Then you get taken seriously. That’s when they found factor 5 Leiden. So between the two my body and mind were trashed.