4 ms·
I have a similar story, with an antibiotic that is also an immunosuppressant (I was taking it for that effect). After taking it for just 2 weeks, I had terrible
by throwaway584568 6y ago
I have a similar story, with an antibiotic that is also an immunosuppressant (I was taking it for that effect). After taking it for just 2 weeks, I had terrible pain in my arms and legs. My doctor suggested I keep taking it for a couple of weeks more, to see if it went away. It got worse, and I stopped it a week or so later. I understand this is a very rare side effect, so rare I don't think it was even mentioned in the leaflet - I'm just incredibly unlucky to have such a reaction.
I was left with small fiber neuropathy (nerve damage) in my arms and legs, and with CFS (Chronic Fatigue Syndrome) too. This means I'm in constant, unending pain (which takes a huge mental toll), that I'm tired all the time, and if I do any more than the gentlest of exercise, I fall asleep and am more tired and in even more pain for days or even weeks afterwards. It's fucking horrible.
This was about 6 years ago, and I'm pretty sure it's permanent. I haven't quite given up hope though - I have several Google Scholar alerts setup, and read several papers every week, in the hope of finding something that might reverse things even a bit.
- nikomen 6y agoWhat type of immunosuppressant were you prescribed? I recently took prednisone for a little over a week and ended up with some nerve issues afterwards, but not as bad as typical small-fiber neuropathy. The symptoms still haven't resolved.
- throwaway584568 6y agoI don't want to mention it's common name specifically, as this is rare enough that it could be linked to me personally. It is actually an antibiotic (I'd somehow forgotten that - edited my original comment now!), but once that acts as a immunosuppressant, and it's less-common name is diaminodiphenyl sulfone.
- Arete314159 6y agoI have CFS too, although from a different trigger. FWIW, I found the doctors at the Center for Complex Diseases to be amazing. They're 10x doctors, true scholars of the human body. They specialize in CFS.