4 ms·

"'chronic lyme disease' is something I imagine has touched someone in each of our networks." My wife, a retinal surgeon, lost her career due to it. She was pre

"'chronic lyme disease' is something I imagine has touched someone in each of our networks." My wife, a retinal surgeon, lost her career due to it. She was pretty much unable to function at a professional level for several years, until she was cured with disulfiram. https://www.lymedisease.org/disulfiram-kinderlehrer/ https://www.lymedisease.org/disulfiram-kinderlehrer/

jMyles 6y ago
Wow, it gives me joy to hear about her relief! I know someone with whom I'm going to share your story right away. I hope that this kind of chronic suffering (and the possibility for therapies) is the outcome of our discussions about long-covid, rather than pretending that this is a novel phenomenon in order to score political points.
- garyrob 6y ago
  I suggest reading the article I linked. It talks about Dr. Ken Liegner. He just happened to be my wife's Lyme doctor, and I'm pretty sure my wife was one of the 30 patients mentioned in the article. My son was another of them. (I didn't mention him in my original post because I wanted to keep it simple and short. But now that you've expressed this interest...) My son was basically unable to function for his last year of high school and had to take a year off before going to college because of it. He, too, got on disulfiram and it cured him. He had been on heavy duty antibiotics. At one point. We hypothesized that maybe the Lyme was cured, and it was the treatment that was making him feel so terrible. So we took him off the antibiotics. (This is with Dr. Liegner's consent; he thought it was worth trying.) A week later, my son felt better than he had in a couple years. Another week later, and he was starting to feel sick again. Another week later, he had all his lyme symptoms back and went back on the antibiotics, which helped but didn't cure. Disulfiram cured both of them. BUT!!!!! The disulfiram was a very tough treatment. Near the end of the planned multi-month course of disulfiram, I had to take my son to the ER because he was borderline hallucinating. As I said, it was near the end of the planned treatment anyway, so we took him off it. He immediately started feeling better. This is consistent with what you'll read in the article about psychological effects from the disulfiram. And he was cured of his chronic Lyme. Period. The Lyme symptoms were gone and they stayed gone. I think Dr. Liegner may now being doing smaller daily disulfiram doses for a longer time, in order to avoid these affects. My wife and son were (probably) among the first 30 people to ever have this treatment, and so it is a lot better understood now. It might be a good idea for your friend to give Dr. Liegner's office a call. He's in Pawling, NY. He's expensive and not in a convenient location for most people. We lived in Bangor ME, and drove 7 hours each way for every appointment with him. Well worth it. And he's probably Zooming now for at least a portion of the necessary appointments. Please let me know if anything positive comes from our exchange of messages here, I'd love to know that it had been of use! Or write if you or your friend would like any other info. garyrob at me.com.

jMyles 6y ago

Wow, it gives me joy to hear about her relief! I know someone with whom I'm going to share your story right away. I hope that this kind of chronic suffering (and the possibility for therapies) is the outcome of our discussions about long-covid, rather than pretending that this is a novel phenomenon in order to score political points.

garyrob 6y ago
I suggest reading the article I linked. It talks about Dr. Ken Liegner. He just happened to be my wife's Lyme doctor, and I'm pretty sure my wife was one of the 30 patients mentioned in the article. My son was another of them. (I didn't mention him in my original post because I wanted to keep it simple and short. But now that you've expressed this interest...) My son was basically unable to function for his last year of high school and had to take a year off before going to college because of it. He, too, got on disulfiram and it cured him. He had been on heavy duty antibiotics. At one point. We hypothesized that maybe the Lyme was cured, and it was the treatment that was making him feel so terrible. So we took him off the antibiotics. (This is with Dr. Liegner's consent; he thought it was worth trying.) A week later, my son felt better than he had in a couple years. Another week later, and he was starting to feel sick again. Another week later, he had all his lyme symptoms back and went back on the antibiotics, which helped but didn't cure. Disulfiram cured both of them. BUT!!!!! The disulfiram was a very tough treatment. Near the end of the planned multi-month course of disulfiram, I had to take my son to the ER because he was borderline hallucinating. As I said, it was near the end of the planned treatment anyway, so we took him off it. He immediately started feeling better. This is consistent with what you'll read in the article about psychological effects from the disulfiram. And he was cured of his chronic Lyme. Period. The Lyme symptoms were gone and they stayed gone. I think Dr. Liegner may now being doing smaller daily disulfiram doses for a longer time, in order to avoid these affects. My wife and son were (probably) among the first 30 people to ever have this treatment, and so it is a lot better understood now. It might be a good idea for your friend to give Dr. Liegner's office a call. He's in Pawling, NY. He's expensive and not in a convenient location for most people. We lived in Bangor ME, and drove 7 hours each way for every appointment with him. Well worth it. And he's probably Zooming now for at least a portion of the necessary appointments. Please let me know if anything positive comes from our exchange of messages here, I'd love to know that it had been of use! Or write if you or your friend would like any other info. garyrob at me.com.