4 ms·

Very similar experience and age to me. I tested positive for Covid late March last year. I was moderately sick for 2 weeks, chest pains, tight chest, loss of s

Very similar experience and age to me. I tested positive for Covid late March last year. I was moderately sick for 2 weeks, chest pains, tight chest, loss of smell etc, also had a weird rash on my shins (mini blood blisters). Any way I thought I was better, I had a bout of small relapses and general fatigue through April then come mid May, I basically had a huge relapse in symptoms, admitted to hospital with Myocarditis (heart inflammation caused by my immune response to the virus), highly elevated troponin levels (indicators of cardiac damage) - which meant bed rest for 3 months. One other weird symptom I had that was confirmed by MRI, was the V5 nerve on my cheek had its Myelin protein sheath stripped/damaged by my immune response/covid which has caused me facial pain (Neuralgia) for most of the past year. According to the Neurologist I saw this is uncommon in Covid, but happens to MS patients and more commonly post other viruses. Anyway I am much better now and barely have any symptoms now with the exception of getting tired much more easily. I wouldnt wish this disease on anyone. I hope your symptoms improve. I also have told basically no one except my immediate family about my symptoms as its not worth the pain of discussion!

mentos 6y ago
My dad was in the hospital with Covid for 3 weeks 1 completely unresponsive last March 2020 from the NYC strain. Everyone in my family (5 people) developed primary symptoms but me (33 years old). I had a very strange course of leg/muscle pain, scratchy throat the first month then chest/arm pain for another month with GI issues the next. My 3 year old niece who had beaten the primary symptoms relapsed with a fever end of September and right around that time I started getting neurological issues where I was dizzy and had a burning cheek and buzzing/tingling fingers/toes with mild muscle twitching in my face. 6 months later I’m much better but still grappling with dizzyness and nerve pain in my cheek which sounds similar to you. I’m convinced my immune system is going nuts from exposure to Covid and I fear I may have developed a more long term auto immune issue. Probably time I take these symptoms to a neurologist. Did the Dr prescribe you anything for your myelin damage?
- memossy 6y ago
  You may wish to look into Clemastine/Tavegil antihistamine, easy to get over the counter.
- jgdsrgbk 6y ago
  My wife has MS and believe me if there was treatment for myelin damage 1) I'd tell you right now and 2) MS wouldn't be nearly the awful disease it is But no, if you can stop the thing that's destroying the myelin while it's happening, sure, but as far as I'm aware once the damage is done it's done You'll heal naturally most of the way but not all the way, if the damage is anything like the damage done by RR MS
  - monoideism 6y ago
    > But no, if you can stop the thing that's destroying the myelin while it's happening, sure, but as far as I'm aware once the damage is done it's done Yes, as you allude to, once the original cause is removed, peripheral nerves do typically heal in most people, however slowly. There's emerging evidence that central nerves heal as well. I can attest to this personally, since I've have a neurological condition that causes axonal damage. Each "attack" I've had (a decade apart), it's left me with foot drop, hand drop, loss of sensation in my feet and hands, and severe nerve pain. The second time, I've also developed facial and pelvic neuralgia, including trigeminal neuralgia. But I did slowly heal after the first attack. I regained full motor functions within 2 years, and slowly regained sensation in the years after that. Even the nerve pain got better until the second attack. Now starting to slowly heal once again. According to my neurologist, and also a specialist neurologist he sent me to, people typically do slowly heal to some extent if they have proper nutrition unless the original cause is still present (which it would be in RR MS).
- phyalow 6y ago
  Doc offered to prescribe Gabapentin, I turned him down, but its a good option. Well worth going and getting checked out. All the best.

mentos 6y ago

My dad was in the hospital with Covid for 3 weeks 1 completely unresponsive last March 2020 from the NYC strain. Everyone in my family (5 people) developed primary symptoms but me (33 years old). I had a very strange course of leg/muscle pain, scratchy throat the first month then chest/arm pain for another month with GI issues the next. My 3 year old niece who had beaten the primary symptoms relapsed with a fever end of September and right around that time I started getting neurological issues where I was dizzy and had a burning cheek and buzzing/tingling fingers/toes with mild muscle twitching in my face. 6 months later I’m much better but still grappling with dizzyness and nerve pain in my cheek which sounds similar to you. I’m convinced my immune system is going nuts from exposure to Covid and I fear I may have developed a more long term auto immune issue. Probably time I take these symptoms to a neurologist. Did the Dr prescribe you anything for your myelin damage?

memossy 6y ago
You may wish to look into Clemastine/Tavegil antihistamine, easy to get over the counter.
jgdsrgbk 6y ago
My wife has MS and believe me if there was treatment for myelin damage 1) I'd tell you right now and 2) MS wouldn't be nearly the awful disease it is But no, if you can stop the thing that's destroying the myelin while it's happening, sure, but as far as I'm aware once the damage is done it's done You'll heal naturally most of the way but not all the way, if the damage is anything like the damage done by RR MS
- monoideism 6y ago
  > But no, if you can stop the thing that's destroying the myelin while it's happening, sure, but as far as I'm aware once the damage is done it's done Yes, as you allude to, once the original cause is removed, peripheral nerves do typically heal in most people, however slowly. There's emerging evidence that central nerves heal as well. I can attest to this personally, since I've have a neurological condition that causes axonal damage. Each "attack" I've had (a decade apart), it's left me with foot drop, hand drop, loss of sensation in my feet and hands, and severe nerve pain. The second time, I've also developed facial and pelvic neuralgia, including trigeminal neuralgia. But I did slowly heal after the first attack. I regained full motor functions within 2 years, and slowly regained sensation in the years after that. Even the nerve pain got better until the second attack. Now starting to slowly heal once again. According to my neurologist, and also a specialist neurologist he sent me to, people typically do slowly heal to some extent if they have proper nutrition unless the original cause is still present (which it would be in RR MS).
phyalow 6y ago
Doc offered to prescribe Gabapentin, I turned him down, but its a good option. Well worth going and getting checked out. All the best.