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The problem with the medical world vs people who suffer from chronic illnesses is even the doctors who treat them don't seem to understand how bad it is to live
by emptysongglass 6y ago
The problem with the medical world vs people who suffer from chronic illnesses is even the doctors who treat them don't seem to understand how bad it is to live with.
Last time I saw my ENT doctor he's like well it's not that bad and I just wanted to scream at him.
I liked how someone else on HN put it: your body is constantly sending an error code but there's no way to shut it off.
Do you also have chronically irritated, dry sinuses with no polyps?
I've tried nasal irrigation and a corticosteroid but nothing works.
- xiphias2 6y agoYes. My symptoms correlate with the amount of air pollution around me, and much worse in winter. Right now the only thing I can do is travel away from Europe to south/central america for the winter. I tried all commercial air cleaners, but they don't decrease toxic gases, just PM2.5, which doesn't help me. I'm thinking of building a house/apartment with very clean air (maybe using nitrogene and oxygene concentrator). Also I'm planning to try cortisosteroid in my sinuses using a biodegradable net. Biologics may help as well, but they help only IL-4 / IL-5 type inflammation, and I don't know what cytokins are causing my inflammation (I was thinking of doing an cytokin profiling from biopsy, but of course I need a great ENT doctor to help with it). At the end the main problem is that there are multiple causes with CRS symptoms, so it's impossible to have 1 drug to cure all the symptoms. Also as it's not deadly short term, FDA is much stricter with the drug companies that try to come up with treatments, which is understandable.