3 ms·
Couple of other ones: - If you're going to do chemo and nobody recommends a port, ask about them...particularly if you are a tough stick. What used to be 5-15
by jcims 6y ago
Couple of other ones:
- If you're going to do chemo and nobody recommends a port, ask about them...particularly if you are a tough stick. What used to be 5-15 minutes of agony and stress that would regularly involve bringing in the good hands team with the ultrasound kit turned into basically nothing. Ports can be used for labs as well fwiw.
- If you are a tough stick and don't get a port, don't be afraid to ask for the ultrasound.
- If you're inpatient for some reason and your chemo appointment is getting close, begin asking your doc and the attending about it ahead of time. Some hospitals will do an infusion in your room, some won't...and in those cases you might just miss a dose.
- If you regularly need saline to keep up hydration there are in-home nursing facilities that can do this rather than having to go to the hospital every time. They can teach you to 'de-access' the port as well, so that they don't have to hang around for the hour to get through the bag.
- Emesis bags are available on Amazon by the case.
- If margins are starting to thin, make sure that there is regular bloodwork being done that covers iron, liver function and other diagnostics that are relevant to your situation. Some of these things are slow-movers and can interfere with your treatment plan when they get out of whack. Most of these are available without a referral/prescription from a local hospital or lab.
- If you end up with a hysterectomy or because of your treatment have hot/cold issues in bed, the BedJet is absolutely amazing. https://bedjet.com/ https://bedjet.com/
- trynewideas 6y agoThanks for these. I really want to call out: > make sure that there is regular bloodwork being done that covers iron We've been fighting anemia during treatment, and regular tests have resulted in blood transfusions that kept us on schedule and ultrasound scans to locate and treat the blood loss.
- jcims 6y agoI got to to the point of an antagonistic relationship with our oncology team on this one. I had to constantly fight with them to get regular labs done even after two separate occasions where our treatment was paused because the numbers were out of whack. I started ordering them directly via the home nurses that were doing or saline and sent them with a giant fuck you to the oncology team when they started dipping. I don't know if your username came from this road you're on but it is absolutely appropriate for it. I wish the best for your and your loved ones.