3 ms·

Also a Keratoconus sufferer. And it also looks like the progression has at least stabilized with age (which makes treatments like CXL kinda useless). What are y

Also a Keratoconus sufferer. And it also looks like the progression has at least stabilized with age (which makes treatments like CXL kinda useless). What are you using for correction? I ask because my bad eye (which can't get close to correction with glasses) now gets better than 20/20 vision with hybrid lenses. And my good eye can't get the same acuity! It's an interesting sphere of research (so much is still unknown, and there are so many changes in the material science aspects of it). I got by for a long time with "extended-range" toric soft lenses and have very different experiences depending on the material type. (For instance, Frequency 55 XR was made with 'Methafilcon B' 'High Water Ionic' and I had 'unexpectedly good vision' with them.) Oh, contact lens material is a rabbit hole: https://en.wikipedia.org/wiki/List_of_soft_contact_lens_materials https://en.wikipedia.org/wiki/List_of_soft_contact_lens_mate...

EvanAnderson 6y ago
I'm really pretty lucky. I can get by only using spectacles. My prescription isn't really too bad. I can get acceptable correction in my good eye and still have passable 3D vision with correction in my bad eye. On that basis I've opted to stay w/ spectacles. (I can get markedly better correction for my bad eye with some more axial tilt. I tend to easily lose convergence with that additional tilt and get massive headaches, however.) I tried soft contact lenses, prior to my keratoconus diagnosis, when I was much younger. The foreign body sensation simply would not go away. It was a massive distraction, to the point that I couldn't really think about much else. Then I start fidgeting with my eyes and end up with swelling and tears. (Hard, balled-up fist eye rubbing from severe childhood allergies is probably the root cause of my keratoconus. The animal allergies are mostly gone now, and the hay fever is only a mild irritation. I can still, however, induce foreign body sensation and massive itchiness just by touching the skin around my eyes. There's probably a bit of obsessive compulsive disorder going on there.)

EvanAnderson 6y ago

I'm really pretty lucky. I can get by only using spectacles. My prescription isn't really too bad. I can get acceptable correction in my good eye and still have passable 3D vision with correction in my bad eye. On that basis I've opted to stay w/ spectacles. (I can get markedly better correction for my bad eye with some more axial tilt. I tend to easily lose convergence with that additional tilt and get massive headaches, however.) I tried soft contact lenses, prior to my keratoconus diagnosis, when I was much younger. The foreign body sensation simply would not go away. It was a massive distraction, to the point that I couldn't really think about much else. Then I start fidgeting with my eyes and end up with swelling and tears. (Hard, balled-up fist eye rubbing from severe childhood allergies is probably the root cause of my keratoconus. The animal allergies are mostly gone now, and the hay fever is only a mild irritation. I can still, however, induce foreign body sensation and massive itchiness just by touching the skin around my eyes. There's probably a bit of obsessive compulsive disorder going on there.)