4 ms·
I've certainly heard the term 'spoonies' a lot in the chronic illness community, but this is my first time seeing this article. It's interesting to see HN decid
by code_duck 6y ago
I've certainly heard the term 'spoonies' a lot in the chronic illness community, but this is my first time seeing this article. It's interesting to see HN decided to discuss this.
I was worn down by undiagnosed celiac for years. That was finally diagnosed, but then I became mysteriously ill again for a couple years, which turned out to be type 1 diabetes (actually 1.5, LADA). People definitely don't understand what it's like living with a limiting factor like chronic pain, fatigue or organ dysfunction until they've experienced it personally or watched someone very close cope with such a thing. Besides how difficult as the physical and mental issues have been, it's also cost me many relationships, financial independence, personal development and a great deal of work opportunities.
I can easily connect with the message of the spoon holding, but I see I misunderstood the metaphor. I didn't realize spoons were like effort tokens... I thought it just meant you had to do everything all day with the inconvenience of holding a bunch of spoons.