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care to elaborate on why your toddler needs so much CPR?

by Edmond 6y ago

dannykwells 6y ago
Yeah one of the more intense but also kind of nonchalant posts I've seen in a long time.
- wincy 6y ago
  I responded to another comment here about why she needs breaths. Basically she has a complication from a spinal defect that causes breath holding, which some kids hold their breath but a normal kid will just pass out and start breathing again. For her, she needs breaths (usually with an oxygenated bag and mask that we keep at home) to get her to wake back up. The first time we tried to give her breaths at home we had to call an ambulance and she went back to the NICU for another 6 months. She spent the first 9 months of her life there. She’s actually a pretty normal two year old now aside from not being able to walk, and the breath holding. Honestly it’s pretty normal at this point for me and my wife so I’m fairly nonchalant about it. Her rate of breath holding has gone way down since we found medication that makes a huge difference. As she gets older it should happen less as her conscious brain becomes better at overriding her emotions. I do what I need to do and if I didn’t compartmentalize I wouldn’t be able to function day to day. Didn’t really expect to get tone policed on Hacker News though.
  - cdogl 6y ago
    FWIW, I thought the nonchalance was a good thing. As you say, there’s no point getting emotional about it online when it’s just a part of your life that needs to be dealt with.
wincy 6y ago
PEAC brought on my Chiari II malformation which is a condition where your brain is “squished”, in her case due to her spina bifida.
- Engineering-MD 6y ago
  I’m thinking this is what you are referring to? Just for others I think PEAC refers to “Prolonged expiratory apnoea with cyanosis” https://www.researchgate.net/publication/314160379_Prolonged_expiratory_apnoea_with_cyanosis_in_Arnold_Chiari_II_malformation https://www.researchgate.net/publication/314160379_Prolonged...
  - wincy 6y ago
    Yes, she turns blue. It’s really scary to people who haven’t seen it before.

care to elaborate on why your toddler needs so much CPR?

by Edmond 6y ago

care to elaborate on why your toddler needs so much CPR?

dannykwells 6y ago

Yeah one of the more intense but also kind of nonchalant posts I've seen in a long time.

wincy 6y ago
I responded to another comment here about why she needs breaths. Basically she has a complication from a spinal defect that causes breath holding, which some kids hold their breath but a normal kid will just pass out and start breathing again. For her, she needs breaths (usually with an oxygenated bag and mask that we keep at home) to get her to wake back up. The first time we tried to give her breaths at home we had to call an ambulance and she went back to the NICU for another 6 months. She spent the first 9 months of her life there. She’s actually a pretty normal two year old now aside from not being able to walk, and the breath holding. Honestly it’s pretty normal at this point for me and my wife so I’m fairly nonchalant about it. Her rate of breath holding has gone way down since we found medication that makes a huge difference. As she gets older it should happen less as her conscious brain becomes better at overriding her emotions. I do what I need to do and if I didn’t compartmentalize I wouldn’t be able to function day to day. Didn’t really expect to get tone policed on Hacker News though.
- cdogl 6y ago
  FWIW, I thought the nonchalance was a good thing. As you say, there’s no point getting emotional about it online when it’s just a part of your life that needs to be dealt with.

wincy 6y ago

PEAC brought on my Chiari II malformation which is a condition where your brain is “squished”, in her case due to her spina bifida.

Engineering-MD 6y ago
I’m thinking this is what you are referring to? Just for others I think PEAC refers to “Prolonged expiratory apnoea with cyanosis” https://www.researchgate.net/publication/314160379_Prolonged_expiratory_apnoea_with_cyanosis_in_Arnold_Chiari_II_malformation https://www.researchgate.net/publication/314160379_Prolonged...
- wincy 6y ago
  Yes, she turns blue. It’s really scary to people who haven’t seen it before.