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Let's say you check your blood pressure at a machine available in a grocery store. Should the store be held responsible based on your interpretation of the resu

by zcid 15y ago

Let's say you check your blood pressure at a machine available in a grocery store. Should the store be held responsible based on your interpretation of the results? Or if you use a blood glucose test? Or a thermometer? Or any other device used for home medical treatment? These companies aren't dispensing medical advice. They are simply providing a service that decodes your personal genetic sequence and allows you access to that information. Why should I need to jump through hoops to have access to the ONE thing in the world that is provably and irrevocably mine? Also, no matter how hard you try, you can't regulate intelligence. In 1000 years, stupid people will still be doing stupid shit.

sixcorners 15y ago
The link that the article pointed to as a good summery: http://www.genomicslawreport.com/index.php/2011/03/11/the-fda-and-dtc-genetic-testing-setting-the-record-straight/ http://www.genomicslawreport.com/index.php/2011/03/11/the-fd... states that he doesn't think that any regulations will be implemented that prevent consumers from getting their raw genetic information. That it is primarily about dispensing medical advice, the protection of information, etc.
mbreese 15y ago
Can you tell me which is the mutation for huntingon's? If not, someone is going to have to tell you where it is and what the 'bad' genotype is. That interaction should be regulated. I'm all for people having access to their data, but blood pressure is an easy concept for people to get their heads around. Interpreting it isn't hard. And we've been using it clinically for close to 100 years. Genotypes are different. You don't ask people to read and ECG. Sure, you can see it, and you can have a doctor explain to you what it means. That doesn't mean you should be able to go to a drug store, hook yourself up to electrodes, and decide that you don't have an arrhythmia.
- zcid 15y ago
  Mutations and known sequences are factual, unchanging pieces of knowledge that I could research and check against my own sequence information if I had the time and desire. So, why not allow me to pay someone else to do it automatically. There is no medical interpretation being made. Matching sequences is a completely objective process. If I want a medical professional's interpretation of the results, I can go see my doctor with my sequencing. Dispensing medical advice without a license is already a heavily policed offense. We don't need more redundant laws on the books.

by zcid 15y ago

sixcorners 15y ago

The link that the article pointed to as a good summery: http://www.genomicslawreport.com/index.php/2011/03/11/the-fda-and-dtc-genetic-testing-setting-the-record-straight/ http://www.genomicslawreport.com/index.php/2011/03/11/the-fd... states that he doesn't think that any regulations will be implemented that prevent consumers from getting their raw genetic information. That it is primarily about dispensing medical advice, the protection of information, etc.

mbreese 15y ago

Can you tell me which is the mutation for huntingon's? If not, someone is going to have to tell you where it is and what the 'bad' genotype is. That interaction should be regulated. I'm all for people having access to their data, but blood pressure is an easy concept for people to get their heads around. Interpreting it isn't hard. And we've been using it clinically for close to 100 years. Genotypes are different. You don't ask people to read and ECG. Sure, you can see it, and you can have a doctor explain to you what it means. That doesn't mean you should be able to go to a drug store, hook yourself up to electrodes, and decide that you don't have an arrhythmia.

zcid 15y ago
Mutations and known sequences are factual, unchanging pieces of knowledge that I could research and check against my own sequence information if I had the time and desire. So, why not allow me to pay someone else to do it automatically. There is no medical interpretation being made. Matching sequences is a completely objective process. If I want a medical professional's interpretation of the results, I can go see my doctor with my sequencing. Dispensing medical advice without a license is already a heavily policed offense. We don't need more redundant laws on the books.