2 ms·
> I don't mean to disparage your assertions, and fully agree with your ultimate point of not letting it get to you. That said, I look forward to the FM/a test b
by shakna 6y ago
> I don't mean to disparage your assertions, and fully agree with your ultimate point of not letting it get to you. That said, I look forward to the FM/a test being more widely recognized.
FM is young. Keeping up to date on it is something I'll leave to my specialist, living with it doesn't require knowing the latest or greatest, so I don't find it disparaging at all.
I mentioned the FM/a test in particular because it's FDA-approved under 21 CFR 866.5700 [0] back in 2012, which generally means it has moved beyond the experimental stage (the notification exception is because it isn't a take-home style test, only a doctor can use it). There's another blood test in the early experimental stages at Ohio State (Stage II) as well, and one from Oxford (Stage II) at similar stages.
Unfortunately, you'll find that the Mayo Clinic doesn't tend to keep up to date, either. They provide some good high-level information on the disease, but because of how young it is, the effort required to keep up to date on a deeper understanding, such as diagnostic options, is probably not worth it to them.
That and a lot of research into fibromyalgia runs into walls and funding problems. We don't have a great understanding of the disease, but we're getting there. The stigma of it being over-diagnosed is probably the most harmful part to research, when that no longer seems to be the case.
[0] https://www.law.cornell.edu/cfr/text/21/866.5700 https://www.law.cornell.edu/cfr/text/21/866.5700