5 ms·

I’m dealing with chronic pain that’s bringing my current career to its end. I’m still unsure how active I’ll be able to be in the future due to it. In my case

I’m dealing with chronic pain that’s bringing my current career to its end. I’m still unsure how active I’ll be able to be in the future due to it. In my case it’s autoimmune; my body has decided it’s going to destroy itself from the inside out. Arthritis, psoriasis, GI issues. It’s getting worse fast enough that I’m being transferred to a hospital for care (Military, stationed overseas) and preparation for retirement. I had a bad day yesterday; out taking care of errands to leave and everything flared. Sometimes there’s no discernible reason. It damned near floored me, but since I don’t have a vehicle I had to walk the couple kilometers back. It’s hard to describe how much ongoing pain changes who you are. It’s a constant struggle to not be an asshole because DAMNIT JUST LEAVE ME ALONE. It’s overwhelming and demoralizing. That’s before we get to the questions of what can you still do to make ends meet.

hombre_fatal 6y ago
It's a shame how hard it is to appreciate the times we're in good health. Though probably an essential adaptation else we'd be in sheer amazement at all times while healthy if we could truly internalize how bad things could get. How would we get anything done if we could truly marvel at peak health if we knew what ultimately awaited us somewhere down the road.
- CobaltFire 6y ago
  I absolutely agree. The positive I take away from it is that I DO appreciate the good days, and my family, and the life I have more. It sounds trite, but the silver lining is there.
- gavinray 6y ago
  "A healthy man wants a thousand things, a sick man only wants one."
  - geek_at 6y ago
    "My friend has cancer and he want's an Iphone"
zdragnar 6y ago
I started Taltz to deal with my psoriasis, and found out what I had thought was something else turned out to probably be psoriatic arthritis, because the pain definitely went down after starting it. It isn't a cure, but perhaps you might find some relief there if you haven't tried it. > It’s hard to describe how much ongoing pain changes who you are This is definitely true. I spent years getting back to being myself, I hope you find your way as well.
- CobaltFire 6y ago
  Part of the reason they are transferring me is so they have the freedom to try some of the immune suppressing drugs. Being deployed overseas means they can't. I'm terrified, but hoping something will help.
  - deleted 6y ago
    [deleted]
  - zdragnar 6y ago
    Ah, i had forgotten about the being deployed bit. Being on taltz does mean having to take a tuberculosis test every 6 months, so I imagine that would be rough. One suggestion is to not be pressured into a biologic before you do some research on incidence rates of side effects. Newer ones seem to be WAY safer than even those that came out a few years ago, but the insurance companies don't seem to care. In fact, it isn't covered at all for me, but the manufacturers have a card you sign up for that lets you get it for $25 (or reduces your copay to $5 if you have a deductible). I'm not sure what access to this stuff is like overseas or through VA, so I am curious and hope it pans out well!
sillysaurusx 6y ago
Just wanted to send you good thoughts. Stay strong. Rooting for you!
- CobaltFire 6y ago
  Thanks! Positive support with no expectation that I listen to a miracle cure or something is one of those things that really helps on rough days!
ekanes 6y ago
Sorry to hear about that. Sending you positive thoughts, I hope it gets better.
- CobaltFire 6y ago
  Thanks! Positive support with no expectation that I listen to a miracle cure or something is one of those things that really helps on rough days!
throwaway_eoe 6y ago
I am also dealing with a at least one autoimmune condition (TBD what exactly is the full story) that causes chronic pain and is seriously damaging my career. I suspect I'm not in as bad a way as you, but know that you're not alone. Sending good thoughts. One day at a time; hoping for more good days than bad for you.
mtgx 6y ago
Have you tried keto? I know I get mild arthritis when I eat some particular sweets or snacks. you should check your vitamin d, insulin and hba1c levels.
nignog101010 6y ago
Try removing EMF radiation from your home. Turn off cell phones and wifi when you go to sleep. It impacts the immune system response contrary to what ZOG tells you: "Oh, it just passes through your body like magic with no side effects!" Forget the fact that military crowd control weapons are just amplified versions of the same tech.

hombre_fatal 6y ago

It's a shame how hard it is to appreciate the times we're in good health. Though probably an essential adaptation else we'd be in sheer amazement at all times while healthy if we could truly internalize how bad things could get. How would we get anything done if we could truly marvel at peak health if we knew what ultimately awaited us somewhere down the road.

CobaltFire 6y ago
I absolutely agree. The positive I take away from it is that I DO appreciate the good days, and my family, and the life I have more. It sounds trite, but the silver lining is there.
gavinray 6y ago
"A healthy man wants a thousand things, a sick man only wants one."
- geek_at 6y ago
  "My friend has cancer and he want's an Iphone"

zdragnar 6y ago

I started Taltz to deal with my psoriasis, and found out what I had thought was something else turned out to probably be psoriatic arthritis, because the pain definitely went down after starting it. It isn't a cure, but perhaps you might find some relief there if you haven't tried it. > It’s hard to describe how much ongoing pain changes who you are This is definitely true. I spent years getting back to being myself, I hope you find your way as well.

CobaltFire 6y ago
Part of the reason they are transferring me is so they have the freedom to try some of the immune suppressing drugs. Being deployed overseas means they can't. I'm terrified, but hoping something will help.
- deleted 6y ago
  [deleted]
- zdragnar 6y ago
  Ah, i had forgotten about the being deployed bit. Being on taltz does mean having to take a tuberculosis test every 6 months, so I imagine that would be rough. One suggestion is to not be pressured into a biologic before you do some research on incidence rates of side effects. Newer ones seem to be WAY safer than even those that came out a few years ago, but the insurance companies don't seem to care. In fact, it isn't covered at all for me, but the manufacturers have a card you sign up for that lets you get it for $25 (or reduces your copay to $5 if you have a deductible). I'm not sure what access to this stuff is like overseas or through VA, so I am curious and hope it pans out well!

sillysaurusx 6y ago

Just wanted to send you good thoughts. Stay strong. Rooting for you!

CobaltFire 6y ago
Thanks! Positive support with no expectation that I listen to a miracle cure or something is one of those things that really helps on rough days!

ekanes 6y ago

Sorry to hear about that. Sending you positive thoughts, I hope it gets better.

CobaltFire 6y ago
Thanks! Positive support with no expectation that I listen to a miracle cure or something is one of those things that really helps on rough days!

throwaway_eoe 6y ago

I am also dealing with a at least one autoimmune condition (TBD what exactly is the full story) that causes chronic pain and is seriously damaging my career. I suspect I'm not in as bad a way as you, but know that you're not alone. Sending good thoughts. One day at a time; hoping for more good days than bad for you.

mtgx 6y ago

Have you tried keto? I know I get mild arthritis when I eat some particular sweets or snacks. you should check your vitamin d, insulin and hba1c levels.

nignog101010 6y ago

Try removing EMF radiation from your home. Turn off cell phones and wifi when you go to sleep. It impacts the immune system response contrary to what ZOG tells you: "Oh, it just passes through your body like magic with no side effects!" Forget the fact that military crowd control weapons are just amplified versions of the same tech.