4 ms·
> After, what 100 years(?) we find ourselves where we are no, with the patient having no control (and often no knowledge) of the issues that relate to them, wh
by monkeydreams 6y ago
> After, what 100 years(?) we find ourselves where we are no, with the patient having no control (and often no knowledge) of the issues that relate to them, while the system has it all.
I'd argue this, but I recognise I am in a privileged position of knowing how the systems work. HIPAA (in the US) and similar legislation in other countries actually puts a lot of power in the hands of patients - if they know how to use it.
You are never going to be in the situation where the patient controls their data completely (what happens if they are non-responsive, drunk or psychotic and unable to legally consent to an intervention they desperately want). I think we shall move towards access to data, and possibly interpretation of that data, but not ownership. Control of the data will always come with caveats, as the body paying for the treatment will always assert their right to how the data is transmitted to minimise costs.