Ugh. I'm sorry for your circumstances. Sorry to everyone, really. But it's oddly nice to know I'm not alone. Many great replies. Covering most of what I'd say.

Ugh. I'm sorry for your circumstances. Sorry to everyone, really. But it's oddly nice to know I'm not alone. Many great replies. Covering most of what I'd say. Piggybacking on your reply with some "Yes, and...", because your advices are closest to my two cents. "Advocate for yourself. I was misdiagnosed six times before they finally figured out my issue." Same. Many times. I advise everyone to never accept "No". Someone somewhere has the answers we need. Keep searching. "Choose a supportive partner." I have no idea how to do that. "Keep a detailed diary of your symptoms and your daily activities, even when you're feeling good." And get a fitness tracker. Self reporting is not reliable. My most recent example: I literally felt no different on or off wellbutrin (prescribed to help me recover from a surgery). I only knew that it was kicking my ass because of my Apple Watch's activity monitoring (step counter). Related bonus tip: I periodically stop misc scripts, just to be sure they're still actually helping me.