7 ms·
Have an emotional support network in place. My spouse has a chronic condition and her family is almost useless, and my family is worse than useless. Luckily we
by thewebcount 6y ago
Have an emotional support network in place. My spouse has a chronic condition and her family is almost useless, and my family is worse than useless. Luckily we have each other and I have very flexible work conditions. She's also found Facebook groups for people with the condition. (She'd really love to get off of Facebook, but it's the only place people with her condition meet online.)
I'll share a bit of advice she got from the groups she reads online: "Prioritize your well-being over explaining yourself to people who don't care about your well-being." It's understandable that not everyone has heard of or knows the details of some of these rare conditions. It's crazy how some people (even close friends) will react when you explain the reality of your situation to them. Don't put up with it. Just move on.